Jsack's Mom's Blog

Welcome to my blog where I share my special needs parenting journey with my heart, truth, and love, one story at a time. ❤️

Pull

I find I’m struggling with myself lately. I’m feeling this pull to my past. Where I felt really happy I had a great group of friends I saw daily. I didn’t feel lonely or shut in like I do now. I had my respite worker recently say I needed people. I know she was right, but that didn’t make me like less of a loser. I feel so pulled to my old life where I knew who I could call, count on, and have my back. Now I try to navigate a new town and new people feeling so unsure of myself. I’ve never had trouble making friends but I don’t know this time around I do.

I need to pull myself up by the bootstraps and just keep trying. Having children with special needs doesn’t always open the door to having friendships. I’m afraid of taking my son to a playgroup and he reacts to too much noise and stimulus. Or if he’s sensory seeking and he gets to aggressive with another child. The times I’ve gone I’ve sat on the edge of my seat drinking my tea, and waiting and watching. I find the pull of my friendships and lamenting that I haven’t found a group. I have a few friends and they lead very busy lives.

So I connect with them when it works with their schedules. I don’t complain, I don’t demand, but I do cry silently at night when everyone else is asleep. With that pull from my heart I have to decide if I’m going to stay stuck in my past, or push myself forward with my future. I’ve been attending a support group and its been helping. I’m hoping to connect and get to know some parents there as we walk the same path with our children. I find more and more each day I have to resist that pull and push myself towards my future.

With that push I’m hoping to gain some more confidence in myself. I have a dilemma with my online life colliding with my reality. Online I’m admired, respected, appreciated, and yes even loved. I’m told I’m beautiful, brilliant, talented, and yes even funny. In my reality I struggle with being social. I have children with special needs. I have to keep them calm, regulated, and comfortable in their surroundings. If I don’t there’s hell to pay. Not to many know my struggles. And honestly I don’t ask for pity just a kind word, an invitation, a smile or a hug.

I don’t ask to impose on people’s lives but maybe just maybe I shouldn’t have blogged about this. Because honestly reading it back makes me sound quite pathetic. I have hid in my online world that makes me feel whole. Today I chose to be brave and put it out here because this is, what is is. My online world meeting my reality, the whole ugly, beautiful, poignant truth of it. Written by me a lonely, heartbroken soul just looking for a friend to understand. I have to pull myself out of my self imposed depression. I’m starting with baby steps and going to attend a playgroup geared towards children with special needs.

I’ve been in denial that it’s what my son needed but no Mom is an island. And the potty training blues have gotten me down and I’ve been stuck inside the house for too long. So time to pull up my big girl sexy panties and get this social thing on the go. No one is an island we all need inhabitants to create some sort of bond, a family.

This has been my submission to Ash’s Sunday confession from http://www.morethancheeseandbeer.com. Check out her brilliance, anonymous confessions, and all the other talent that link up. Thank you for reading my blog today.

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Attachment

I think we’re all attached to something in life, in one way or another. I’m personally attached to my love for my family, accolades on my writing, and to characters in books I’ve read. I’ve been so attached to the outcome of a movie I’ve been transfixed by my tv. I think there are healthy attachments and unhealthy ones as well. I will focus on the healthy ones as my love for my husband and our children.

They’re attached to my heart in a way I never believed possible. When I walked down the aisle to my future husband, being led by my loving parents was a magical moment. I felt their attachment to me being the youngest and the last one to marry. I felt attached to them and their love and guidance over the years. As I was leaving them behind as an adult and attaching to my future with my husband to be. The first moment I saw my precious babies come into the world I was attached to my love for them, and how I would guide and protect them as my parents did me.

Now I’ll focus on unhealthy attachments as I think both bases should be covered. I was once attached to an unhealthy relationship. I thought he was an ideal boyfriend. He was the quarter back of the football team, volunteer in the community, and had a small part time business while attending high school. I fell for him pretty hard especially when he buttered me up with fantastic comments. They were good for my ego but not for me. He started out all sweet and charming and had met my family I was living with at the time.

As our relationship progressed I noticed little signs of his manipulation. He spent money on me lavishly. I had my hair and nails done, he loved going shopping with me while I tried on outfit after outfit. I loved all the attention and my kind nature over rode my impulsive one at times, while I said stop, I can’t afford to pay you back. He constantly dismissed me and what he called my foolish notions. My reality came crashing down when we were going away on a school trip. He arrived to pick me up and he was very sullen and quiet.

Due to it being very early in the morning I understood, and continued to babble on about my excitement. We got to our destination and we’re boarding the bus and he goes to the back, and sits with a friend. So I’m thinking this is strange and I sit with some people I knew. After a long ride we finally arrive at the location and I walk up to him and hold his hand. He shrugged me off and says “no, not here” so I let him go. I soon learned that this was the beginning of the end.

I don’t really know anyone but a couple of people and my new boyfriend. I gravitate towards them and try to fit in. I feel really dejected as this is a very close knit group of people. I grab my gear as I’m on a camping trip out in the wilderness, and head up the hill. I set up camp and sit down to build a fire. I gather rocks, twigs, and dead leaves. I’m not the best tent builder so I turn around to adjust it and this wind blows out of nowhere.

I suddenly smell burning as I’m trying to hold onto my tent from blowing away! The wind gust has blown sparks all around and my campsite is starting on fire! I trying to grab blankets and beat them out and I end up spreading them and a spark blows up into my hair!!! I’m freaked out right now and screaming while grabbing my water bottles. Suddenly there’s a noise as a stampede of people comes running through the trees. I’m shocked at their arrival as the smelled the smoke and came running. I try to explain that I didn’t intentionally try to burn down the forest, but with the tinder dry conditions things happened very quickly.

My teachers start gathering my supplies and I look over at my boyfriend (who could be my ex by this time) and he looks mortified. It’s amazing isn’t it how I started this post out about how I’m in love and attached to my family, and my past attachments come trickling in? Now that’s a story and experience I must learn to detach from. It goes to show you where I learned to appreciate negative attachments to more positive ones. And there’s a few more stories in between me getting to that realization. As they say that’s a story for another day, and another stream of conscious thought.

This has been my submission to
http://lindaghill.com/2015/02/13/the-friday-reminder-and-prompt-for-socs-february-1415/
I know it’s Sunday and I’m posting this now. I posted as a draft and forget to change it to publishing. I’m attached to being involved as I love Linda’s Saturday Stream of Consciousness.

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Writer’s Quotes Wednesday

I read this quote today when I found it on the Facebook page Title Wave
https://www.facebook.com/TitleWaveforBooks
I was transfixed by the beauty of it and how I felt it was written just for me.

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This has been my submission to http://silverthreading.com please see what creation she came up with, and all the other talent who link up. Thank you.

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A Mother’s guilt

I’m at my wits end with my oldest son. He said he had a sore throat so I let him stay home from school. The rules are rest, rehydrate, and relax. He had helped clean up the basement so I allowed him a movie with his little brother. I’m upstairs cleaning, laundry, dishes and I go to check on him and he’s downstairs playing video games. I walk into the room and he’s pretending to be sleeping!!!! I told him get up and go to bed. He starts to argue that he was having quiet time because his little brother didn’t want to watch a movie.

So I sent him to bed and I continued folding laundry. Then I can hear him out of his room. I’m ready to lose it I’ve sent him to bed twice and he’s come back out. First he was playing hockey with the Mad dog so I said get to bed! He says I’m hungry; then get your food and get to bed!!!! So he says forget it I’ll just starve you don’t care! So then he’s there for 10 minutes and he comes back out again to ask his brother to go downstairs to watch a movie. Get the $@@% to bed now I bellow!!!!

What is wrong with my kid? He won’t listen, he doesn’t respect me, then he tells me he’s getting yelled at school by five people. And one is supposedly his teacher. Well I’ll be addressing this and I will be sending him to school tomorrow because if I don’t I might just duct tape his mouth shut!!!!!
I don’t know where I went wrong we used to be so close. Then I was so sick and sad when I was pregnant with his brother. I carry a lot guilt because my Mom died then I had my baby five weeks later.

Due to the premature birth he had to stay in the hospitals NICU. When I was finally realized after five days, I still went back and forth to the hospital to care for my baby. This is when I feel the disconnect happened. My son was grieving the loss of my Mom, me not being there, and then a little brother who was sick. What had happened in his little world was too much so he turned to his Dad as his saviour and protector. That’s when it all changed between us.

His attitude changed towards me and jealously set in because I was always with my baby. Even though he adored his baby brother. It didn’t matter how much that new love was blossoming and growing, he had lost a part of his Mom. I had to be strong, stoic, and a rock for my children. Meanwhile I was dying and falling apart into little broken, jagged pieces. My heart was shattered I lost my one and only one and I felt like a part of me had died too! Not something a four year boy could understand with his precious heart. So I put my grief on hold to deal with his.

I thought I was doing the right thing as I struggled with intense grief of my own, sleep deprivation, and adjusting to an anti depressant. I didn’t want to be that parent that checked out when my kids needed me the most. It was bound to happen, as I just felt like I was a medicated brain and a body barely able to function. I honestly don’t know how I got through that difficult time. Grief recovery, family, friends, my husband and the love of my sons all played a role.

Life within that little bubble of calm helped me exist. As my body and my brain began to connect as I adjusted to my medication. But my little boy changed as his brother grew up. He got more abrasive with me, his angry tantrums became longer, and I went into research mode. If I don’t understand something I will read until I do. I read books, listened to lectures, attending parenting workshops. In order to understand what had happened to my son. I wish I had looked more into neurology than maybe I could see the early signs of his brain changing.

The ADHD behaviours, dyspraxia, and Sensory Integration disorder were there. He was just so much like me sensitive with an explosive temper that I just saw pain, grief, and jealously. This is when the switch happened, and when I had to fill out recent questionnaires about these behaviours it was hard to hold back the tears. I cried for that little boy who lost his Grandma, Mom, and gained a baby brother. I cried for my lack of understanding, the turmoil, and stress that cyclones around me.

And most of all I cried for that broken relationship between a Mother and her first born. I pray I can repair it before it’s too late and I lose his love and kindness forever. That’s a Mother’s guilt always wearing my heart on the outside of my body. So here I am today parenting through the pain and loving myself and my family with everything I have. Praying for that change to patch my oldest son’s heart back together. That’s Motherhood both beautiful with the moments of cherished gazes and spoken words of I love you. And crushing defeat and frustrating when those words turn to you don’t care, you don’t love me. I put my eyes on the prize and slowly, but carefully walk that tightrope of love and hate for myself.

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Before

I’m sitting here trying to think about how my life was before mental health disorders became an issue. I remember being very young and watching scary episodes in my family play out before my eyes. I was scared and sensed there was danger so I just stayed clear and pretended I was sleeping while chaos ensued around me.

I had an interesting childhood, a very loving and devoted Mom and five siblings. Four of them were a lot older than me, and graduated or were in high school when I was born. My parents had a loving marriage before reality crashed in and my Dad found someone else. That time in my life was heart breaking and unpredictable, as I was sent to stay with my Dad and his new family that belonged to his girlfriend. I seen and heard things I didn’t want to know about.

Alcoholism was predominant in my family tree at that time. So I saw adults behaving badly fighting, cursing, and other drunken behavior. I never saw that with my Mom. She was very religious, honored God, and we went to church every Sunday with her. Every second weekend I would be in the middle of these drunken debauchery nights and feel so confused. I would wake up on the Sunday and there would be no church.

At first the thought of sleeping in was exciting to me but there was always work, and plenty of it. My Dad was raised to believe that idle hands were the Devils workshop. So if he had to work then so did his kids. We had chores to help out with the household and other outside ones. My favorite thing to do was help my Dad in the garage working on his logging truck.

I would spend hours with him cleaning the cab, greasing the axles, and operating the tire gun. I loved those times because we would talk and the stereo would be blasting Charlie Pride, Conway Twitty, and George Jones. He loved the old classic country and I would entertain him with my singing and dancing to Glen Campbell’s Rhinestone Cowboy.

I was only four when my parents separated and I was your proverbial people pleaser, trying to make them both happy. My Mom’s heart was broken as she tried to pick up the pieces of her failed marriage and move on and raise my sister and I. I was her friend and confidant helping her through and remaining loyal and steadfast. She suffered from anxiety and depression throughout my whole life.

I always prayed to God to give me a magic wand like the a fairy Godmother in Cinderella, and make her fears disappear. My Dad had told me he just wanted to be happy so he chose a different life with a different family. This was something that was very difficult for me to except, but I really tried for my Dad’s sake. I think this is where these adult situations gave birth to my anxiety. A monkey on my back today that I still have to control.

I never planned on having to make everyone happy, but somehow I felt like it was my job. What was life like before my parents separated? I have no clue, I was too young to remember. I have a few memories and some involved traveling , visit my Grandparents, and meeting lots of different people. My Dad and his girlfriend were in the process of building a house so there was always people coming and going. My brothers helped with the construction, my brother in-law with the electrical wiring, concrete mixers and painters.

I still remember placing my hands and carving my initials in the cement. Before I knew what divorce meant at five, I was a product of it. My parents never officially did that paperwork, it just felt the same as if they did. My Dad never did remarry as my Mom wouldn’t grant him a divorce. Yet they both moved on, my Mom found solace with raising us and being devoted to her church.

My Dad worked a lot and took us traveling to the United States. I’ve seen the open skies of Montana, driven Route 66, had my hands, feet, and legs in all four corners, and spent time wishing upon a star in Disneyland. I look back fondly on those family vacations with a smile. My Mom never got amazing trips like this so I always made it a big deal to find her a souvenir. I remember when we would make phone calls home to her, how lonely and sad she sounded. My Mom’s children were her life.

My oldest siblings were old enough to have their own lives and two were living on their own, and two still in high school. So having my middle sister and I filled up that void she felt with the empty nest syndrome. There was happiness coupled up with the confusion, and I spent a lot of time with both sets of Grandparents.

Before I was even six years old I knew what the classic black and white movies were, how to plant and maintain a garden, and every tune of an Irish song lovingly sung by my Mom and Gram. I still remember hearing stories of the old country(Ireland and Scotland) and how my Great Grandparents came over to start a new life after surviving hardships in their countries.

What was their life like before they ventured to take a boat to the new world of New York and later Western Canada? I often pondered this in my head as I read stories of Charles Dickens. I’m grateful for the lessons I learned from my parents discussions of my ancestors. Knowing I come from people that are so resilient, has had me rely a lot more on my intuition then people’s versions of the truth.

This has served me well from the past to my present. Today I work through my own mental health issues and my children’s, keeping mindful of who I was before, and who I am today. That scared little girl who loved to sing and dance grew up to love to write, and express herself authentically. And if there’s anything I learned in my childhood was be true to myself before trying to please others.

This is my Sunday confession to Ash’s http://www.morethancheeseandbeer.com. Today’s prompt was the word before and I chose to write about my childhood. Please check out her Sunday confessions on her Facebook page, and all the other talent that link up. Thank you. 😊

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Sadness

I’m so relieved I got through this day. I had two hockey games, six trips back and forth and stressful moments. I was finally home and then I went for a nice walk with my sister. We talked about life, love, and memories of our Dad.

He died six years ago today and I don’t know how that time passed. It felt like it stood still for me for a long time. I hold my breath waiting to exhale and heal from this grief. One thing I know is it takes one day at a time. And with great love comes great sorrow. I wonder who I’ll be without the grief, will I even recognize myself? All I know is I keep on living and being the best me I can be. And with that knowledge I know I honour his memory and heal my heart a little more each time.

So I’m thinking of him and enjoyed a nice dinner with my lovely sister and niece, and we toasted to him and all our wonderful memories. It’s so hard just having the memories to cherish, and not the person to hold. So many days, months, and years have passed and I found myself hanging onto precious moments. As they’re all I have now, which hurts more than having to say goodbye.

I pray I don’t forget his laughter, as he had a belly laugh that started at his toes and lifted you up in love and delight. He could curse a blue streak and smile mischievously, he could whistle a tune of anything he heard on the radio and know it by ear.

He loved with a heart as vast as the ocean and would give his shirt off his back to anyone who needed it. Even if it left him naked, and cold. He loved to be helpful and kind, and it’s from him that I learned to pay it forward regardless if there was any reciprocation. He gave with every ounce of his being and still wanted to give more! He taught me what it was to be a humanitarian and see the big picture of things instead of judgement.

I love, miss, cherish, and admire the man he was and the man he was becoming. Thinking of my Dad inspired this poem. Hugs to you in heaven Dad. I know it’s a better place up there with you in it. ❤️

This has been my submission to
https://lindaghill.files.wordpress.com/2015/02/wp_20150130_009.png for her Saturday Stream of Consciousness. The prompt was the opposite emotion. I chose the opposite of happy and wrote about sadness.

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Friday’s Feats and Fails

Wahoo it’s Friday last week I was drinking beer with my husband this week I’m drinking wine with my sister and niece!!! I love when they come to visit it’s like the sun starts shining bright on my heart. 💗 So let’s do a roundup of how my week was. Cheers my dear readers. 🍷

FEAT

It was hockey weekend and we were off on a road trip. I was so excited to get out of town and do some socializing. I got everyone packed up and we were ready to go in record time. And SIRI even cooperated by giving us better directions when we figured it out in map quest, it was quicker to go around the city than through it! My sons were occupied and for once not driving each other to screaming fits.

FAIL

We were 40 kms from our destination and a bad snow storm blew in. That’s life in the Prairies. Everything’s so flat you can literally see it roll in. We saw some erratic driving as the roads turned to ice very quickly. People were passing us and landing in the ditch every five kms, it was so scary. My youngest was sleeping and my oldest was enthralled with his video game, none the wiser. I was so stressed by the time we arrived at the hotel my fingernails had embedded creases in the palms of my hands!!! I cracked open a beer and I was still shaking!

FEAT

It was a busy weekend and the Saturday morning game was at 8 am. It was very early but I had everyone organized to go the night before so it was a case of being motivated. My Captain played a great game and they won 4-3. They had a break and then we ate and played again at 11:30 am. My Mad dog was doing great he was playing and being entertained with his video game device. We even did some colouring as well. My Captain ended up winning the heart and hustle award for the game and I was so proud of him. He kept looking up in the stands while I snapped pictures. ❤️

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FAIL

We arrived back at our hotel very tired and hungry so it was a potluck in the lobby and I was starving. The team won their game 8-3 and spirits were high, and hockey in the hallway was being played. My Captain was hanging out with his friends, and Mad dog was running all over he was so would up that when I tried to get him from playing floor hockey to eat he just lost it. He was going up and down these steep stairs while I was getting us food. I went to take care of him and he was really upset by this time, and honestly so was I. So I grabbed him and carried him back to the room while balancing a plate of food. I was exhausted, embarrassed, and I literally wanted to crawl under the covers and cry. My husband said I shouldn’t worry we’re all parents and get it. When overtired, over stimulated, sensory, ASD behaviours rear it’s ugly head everyone gets caught in the crossfire.

FEAT

After a cooling off period we went for a swim at the local recreation centre. It was so fun to hang out and relax with my kids. I was very happy to find a hot tub and later meet up with a new friend that I’ve been corresponding with. It’s always a treat to find out you gel with someone in person as well as online. Classy from Classy with a touch of some is my sister from the vineyard. We had a lovely visit, enjoying so wine, laughter, and conversation, and she met my family. I know this isn’t always the norm to meet someone off of Facebook and really bond. I used caution as did my friend and we met in a public place. I trust my instincts and the vibes I get. God always leads me to good people, and good situations as long as I pay attention to my intuition. I have a wonderful friend as the result and we look forward to a much longer visit next time. 😃
FAIL

We made it through the night with very little sleep but had a 10 am game. So breakfast was had at the hotel and off to the rink we went. The opposing team was very good and we ended up losing 7-3. It was heartbreaking to see as my son’s team was up 3-0 in the second period. We were tired and hungry so off for lunch we went. The next game wasn’t till 3:15 pm so that was a long wait. I was already high strung from having to be around a lot of people and keep Mad dog regulated. So I was just going to watch a movie and then wander in the for game. That didn’t go so great as we ended up running for a bathroom and my son had an accident. I cleaned him up and while I washing my hands he took off!!! I was able to catch him in the stands but I was really scared so we went back to the truck again. 😳

FEAT

My Captain’s played for fourth place and still made it into the medal standings. I was so proud of him and how hard he worked and that he kept out of the penalty box this game. We made it home to catch the last ten controversial minutes of the Super Bowl. All in all it was a fun weekend but four hockey games and all the activity was a lot for my sons to process. I will have a better game plan in mind for our next adventure. The next two days I was a sloth. I caught up on laundry and became a homebody for the week. So now we’re working through some potty training aggression so that’s disheartening. I have faith though we’re not giving up the dream of being diaper free, just postponing it, till we get back on track. It was fun to get away, and it’s always so rewarding to get back home. Till next time my friends enjoy your weekend making some wonderful memories. 😊

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This has been my submission to Ash’s Friday’s Feats and Fails. Check out how her week went and all the other talent who link up. Thank you. 😘

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Writer’s Quotes Wednesday

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This has been my submission to http://silverthreading.com. Please check out her beauty and all the other talent who link up. Thank you. 💖

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One Liner Wednesday

I’m not a perfect Mom, in fact I’m perfectly imperfect a fact I acknowledge and celebrate. So my language gets a bit colorful at times. So much so my son has said I needed a swear jar. Here’s a conversation that’s taken place recently.

Son- “Mom, here’s a jar for when you say bad words.”
Mom- (Takes jar sheepishly) “Ok son, thanks I think…”
Son- “So Mom if you fill this up we can do something special.”
Mom- “What’s that son?”
Son- “Swear away Mom, because we’re going to Disneyland!”

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Meltdowns and Moments

I want to share this amazing Dad who writes so beautifully and eloquently. All his stories touch my heart, and tickle my funny bone but this one reached right down into my brokenness and lifted me up. Thank you Developing Dad for being my angel wings. ❤️

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There’s a lot of little boy in Char these days but his fading toddlerhood is grasping tightly and asserting itself. He’s resisting a change that is as inevitable as it is terrifying as it is exciting. With every transition like this parts of him pass to history and parts of us do as well. While the resistance can be annoying, we all get it. We understand more than he knows. We abhor the idea of him being independent in all the ways we are diligently training him to be. We’re at the ‘finishing school’ stage of toddlerdom. We are working to teach him courtesy, niceties, the expected behavior of polite society. As a conscientious objector to such responsibility he is reverting to earlier tools of resistance, such as crying, yelling, aggressively resisting direction, stamping feet and crying louder.

The kid is in an epic phase of melting down. He has…

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