Jsack's Mom's Blog

Welcome to my blog where I share my special needs parenting journey with my heart, truth, and love, one story at a time. ❤️

Celebrate Blogging Linkup Party #20

WELCOME TO THE PARTY!!!
Is it just me or is November flying by?!
I can’t believe Thanksgiving is less than a couple weeks away.
This past weekend we did our thankful jar and made some
leaf rubbing books. 

I also did a little Christmas shopping! I got the kids Christmas
pajamas, Christmas books, advent activity books and other little things.
I love a Target Christmas run…don’t you?!-Arianne

LET’S START CELEBRATING…!
Grab a button for your blog sidebar!

CELEBRATE BLOGGING LINK-UP PARTY!

CELEBRATE WITH US…JOIN OUR FACEBOOK GROUP:
FOLLOW OUR PINTEREST BOARD:
We pin every link to our board every week!!!

ARIANNE FROM FAMILY JOYS:

JEANINE FROM JSACK’S MOM’S BLOG

BIBI FROM SIMPLE SUMMIT:

SHANNON FROM CRAFTY MAMA IN ME:

MARILYN FROM FINANCIALLY SHOPPING:





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photo
Arianne
Family Joys

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The Haircut

I see the long shaggy hair covering his eyes and he’s bent over trying to put his Batman in his Bat mobile. He’s getting so frustrated because he can’t see what he’s doing and this task is taking too long to figure out. I gently offer to help him and he runs away in anger and slams his door. He’s only four and already acting like a teenager. I pick up his toys, walk to his room and gather him in my arms. 

  
I wrap his blanket around him holding him tight in my Mama bear hug. Deep pressure soothes him and I rock until he stops crying. I brush the hair back from his eyes and I say the dreaded words “oh honey it’s time for a haircut.”

 Soon his body tenses and he’s ready for fight or flight. I rock him and tighten my hold till his fear ridden body is limp in my arms. 
The next day I tell my husband our son needs a haircut. He shakes his head and says “well I don’t want to do it.” Neither of us do it’s a two hour ordeal and the emotions overflow and we’re all stressed. We take turns holding our sweet boy who will turn into a howling banshee any moment. It’s my turn to perform the task of completing a decent haircut. 

I assemble my tools scizzors, buzzer, guards, comb, spray bottle, and a cloth. He will not wear a cape so we strip off his shirt and wrap a towel around him. I place his blanket in a clear plastic bag to protect it but so he’s still able to see it. Next I grab the iPad, thermos of water, and a bag of lollipops. 

I call my husband to help wrangle our son and it’s easier to catch a greased pig at a BBQ! He holds him tightly and I begin wetting down his hair. I’m being very careful to not spray his face at the same time singing his favourite song while his Dad finds him his favourite superheroes on YouTube. I begin to comb his hair and I cautiously snip his bangs. This is not an easy task as I venture close to his eyes. 

I comb his hair out a few more times and move to the sides. I gently approach his ears and I’m holding my breath while I cut around this delicate area. Next I move to the back of his head making sure to work quickly now as he starts to wiggle. I move over to other side and you can hear a pin drop as I cut around the other ear. The hair starts falling and covering his face and blanket in the plastic bag. 

I quickly blow it away and brush off his lap. He starts in with a low growl and I back off completely gently soothing him with my singing.  I carry on only to reach an impasse as he doesn’t want to sit any longer. I bribe him with a lollipop and ask his Daddy to hold him in his blanket bear hug. Instantly he’s soothed and I continue cutting. I’m not a hairstylist I have no professional experience whatsoever. Other than cutting his big brothers hair in the classic “page boy” style.

 I comb out his hair and continue cutting until he gets excited with the video and jerks his head and shoulders around. I narrowly miss stabbing him in the back of the neck! I tag team out with my husband and we trade spots. He plugs in the buzzers and I brush the hair away from our sons face and body. I prepare him for the buzzing sound and hold on to him tight because I know this is going to be a bumpy ride. 

His Dad works quickly and efficiently as I tighten my grip and sing louder overtop of the sound of the buzzers. He’s on my lap wiggling out of my arms and it’s like holding a bag of snakes! We’re almost in tears and we quickly wash his hands and face that are covered in hair. I pick up the hand mirror so he can survey our work and he starts to cry he wants all his hair back. A full sensory meltdown ensues while he can’t process what happened and why I can’t put the hair back. This is the invisible cloak that he wears as he tries to process all eight of his senses. 

I can only imagine what this has felt like for him. As much as we prepare him for haircut time it’s still unbearable. We let him run free and then I change him into his pyjamas while I make him a snack and give him something to drink. He sits at the table singing away between bites and I look at his happy face in awe. Just moments ago I imagined that the clippers felt like hot razors attacking his scalp as his body, brain, and central nervous system were in overload. He finishes up his snack, I wash his hands and face and hug him so tight while telling him how proud I am of him. 

He cuddles up with his Dad and watches a cartoon before storytime. I clean up the mess in the kitchen, sweeping, making lunches, and pour myself a stiff drink. I go downstairs and sit and sip while glancing up at my son and his Dad nestled together in the recliner. My husband says “thank you for being a brave boy for Mommy and Daddy.” 
His eyes well up with tears and he holds his Daddy’s face in his little hands and says “you hurt me Daddy.” I watch my husband’s face crumple and we look at each other and silently agree that this will be the last haircut he ever gets at home. This is our life with Sensory Processing Disorder. 

Welcome to the Sensory Blog Hop — a monthly gathering of posts from sensory bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about what it’s like to have Sensory Processing Disorder and to raise a sensory kiddo!

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5 ways to make 2016 my year 

Happy new year blessings to you!  I rang the new year in the same way I do every year cuddling with my sleeping children. They try to make it to midnight and watch the ball drop in Times Square on Dick Clark’s Rocking New Years Eve party. Earlier I spent an hour in the hot tub with my husband talking about our goals for the new year. This is a list I’ve come up with as result of that conversation. I’m in restoration than resolution mode as these are ongoing gifts I will be giving myself and my family. 

1. I will love myself more. 

I’ve gone through a lot of self reflection and introspection throughout last year. Every problem, issue, or obstacle that stopped me in my tracks is at the core of my not loving myself enough. I will be changing that from this day forward as I deserve to look in the mirror and say I love you and really mean it! 

2. I won’t let fear hold me back from my persuing my goals. 

I’ve accomplished a lot of amazing things in 2015. Submitting my writing to various websites, guest blogging, growing my blog and social media followings, being accepted into the Wellness Universe community to spread love and positivity, and being published as a contributor in Lose The Cape-(Never Will I Ever than I had Kids). 

  

Available on Amazon Kindle store in ebook and print format

I’m so grateful for these fabulous opportunities in my life! This has been amazing to know I did all these wonderful things yet I know I could’ve done more if I didn’t let my fears and anxiety take over. 

3. I will have faith in myself and my abilities. 

I had a tremendous cheerleader in my life and that was my beloved Mama. After she died I felt a piece of me die with her. She always told me I could do anything I set my mind to. I did do that in the instances I wrote of above, but I had so much fear! I fought through it the best I could but this year I will put faith in God, myself, and the project at hand at the forefront. 

4. I will continue to put my self care as a priority in my life. 

I did this in 2015 which led me to being 30 lbs and 20 inches lighter! I’m very proud of this accomplishment as I learned more about myself on this health journey while getting my stress levels in check. I did this with the help of some amazing people like my coaches on each fitness challenge. Game changers have changed my life for the better and made me a Beach Body Coach. I’m excited to reach even more fitness goals for myself and my family. 

5. I will continue to write out my goal list every day to give me incentive and accountability to keep persuing what I desire. 



I did this for 90 days, everyday for 3 months and my life did indeed change! I was able to start writing my book and work on various other passion projects, be published with the Lose The Cape Team, find an amazing publisher who wants to see me reach for the stars with her guidance and expertise. For my son I was able to secure funding for his therapy team at preschool and at home, and recently got accepted for funding for our family to have respite care. For my husband and I our couple is our goal to make more a priority and stronger in the new year. It’s easy to lose sight of each other as special needs parents. Our children deserve to see us closer, united, and in love more than ever. 

Thank you 2015 for all the life lessons, learning, and showing me I’m stronger physically, mentally, and emotionally than I ever thought possible. Hello 2016 I’m ready for your love, gifts, guidance, and abundance of awesome! 

  This has been submission to the January Blog Hop with Blogs & Business-Mom’s who do it all there are a lot of other talented bloggers who joined in check them and their blogs out today. Thank you! 

January Blog Hop List #1

1. Mrs and Momma

2. Souls Searcher Mom

3. Blessed be the tie

4. Tiggy Poes and Flutterbys

5. Kids Kicks and Cloth

6. Cook with 5 Kids

7. Stay at Home Yogi

8. Harlem Parent Xpress

9. Kids Money Lessons

10. Mommy Gone Tropical

11. Western Newyorker

12. A Kreative Whim

13. Life Lemons and Lemonade

14. Hello Little Bean

15. Sequins in the South

16. Beck List

17. Messy Cutting Board

18. My Dysautonomia

19. Aileen Cooks

20. Jsack’s Mom’s Blog 

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Childhood revisited 

I look up at the tree to see how far I have to climb till I can’t see the ground or feel the emotions I want to get away from. Why a tree you may ask well it could be anything as long as I could be up high. I climbed trees, fence posts, and the  horse stock corral in our backyard. 

When I was inside I would climb on top of my Mom’s black upright piano. I’d sit up there to eat my lunch and watch my favourite tv show Sesame Street. I wanted to live there and go on a picnic with Big Bird and Snufflelufugus. I found Ernie to loud and Bert to anxious, Oscar was too grouchy and the Count slept most of the time. Cookie Monster and Grover were my best friends we could sit around eating cookies all day and sing songs about it. 

I had this stuffed animal of Grover he was blue, soft, and fuzzy. He had long arms and legs I would wrap around my neck and waist and he would go everywhere with me. I adored that pal of mine and everyone would see us together and smile. I wasn’t allowed to take him to school though because my Mom said there was only one Grover and everyone would want one. 

I don’t remember if he was a birthday gift or for Christmas all I remember was he appeared in my life one day and made it all the better. I could talk to Grover about anything fights I had with my siblings, mud pie recipes, and how I could see things that other people couldn’t see. He never judged me and always kept my secrets just like my dog Bo. He was a special dog a gift from my Dad when I was brought home from the hospital. 

He became another member of our family even after my parents separated Bo came to live with us. We lived a simple life in the village with our Mom and my sister. He would walk us to and from school everyday. I would race home with my backpack hanging off my shoulder with the weight of my library books. I would run in the house kiss my Mom, tell her quickly about my day, grab my snack and Grover and disappear into the woods behind our house. 

I would find my special place and sit down and read to my friends. I loved to use different characters voices and inflection in my tone to make the story exciting. This was the way my Mom taught me the magic of story telling and it helped my comprehension and confidence. It helped me escape into a world of adventure in my books when the world was too loud, bright, and confusing. I loved sailing the seven seas with Sinbad, sitting down for tea with Charles Dickens in a Tale of Two Cities and living in the beautiful fantasy world of a Midnight Summer’s Dream from Shakespeare. 

My childhood was a happy place when I was able to climb trees, drink tea with my Mom and her friends, and use my imagination. I would dream about living on Sesame Street reading to everyone on the block and visiting Bob and Maria at Mr.Hooper’s store. There’s still times when I like to take a detour from my stress and go back to my childhood where life was simpler, carefree, and fun. 

🎶 Can you tell me how to get 

How to get to Sesame Street? 🎶

This has been my take on the Daily Prompt Childhood Revisited. 

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The Christmas magic is real 

The magic of Christmas has enveloped me. Last night we went driving around town looking at the Christmas lights. I was taken back to my days as a child as my eyes danced in the twinkling of each bulb. We saw really cute penguins, elves, reindeer, and moose. We also saw some very unique decor with Santa as a hockey player complete with a Maple Leaf jersey, Santa on a  camouflage motor bike, and the one that made me tear up a beautiful white lighted Eiffel Tower. Then the chorus of questions poured in like a hot cup of insatiable curiosity. I then remembered all my inquisitive questions that I bombarded my Mom with every year. From my precious preschooler:

“Will Santa bring me my Bat Cave?”

“Does Santa like cookies or muffins?”

“Will he wake me up when he gets here so we can play with his reindeer?”

From my wise but vulnerable to the truth, elementary school student:

“How will Santa come to our house if we don’t have a chimney?”

“How will he walk through the front door and not set off the alarm?”

And the last one I’m hearing more and more this year…

“Is Santa really real-or is just you and Dad?”

I think back to what my Mom said all those years ago and it’s the same thing that I’ve told my oldest son.


Merry Christmas blessings to you from our house to yours. 🌟

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Writer’s Quotes Wednesday and Be Wow

When life can become a struggle it’s easy to give into the tears and fears. Yesterday I reached out and shared my story of being a special needs parent. I received an outpouring of love and emotional support that it was incredible and it uplifted my heart and spirit! I wrote this before I had opened up my heart and soul and I’m so glad that I was given the gift of compassion and the beauty of friendship. 

 
This has been my submission to Silver Threading for Writer’s Quotes Wednesday and Be Wow please check out all the talent that link up at this special place to be creative. ❤️

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Writer’s Quotes Wednesday with Bewow

Soul searching days have led me to this discovery of my heart and today I share it with you as part of Silver Threading’s Writer’s Quotes Wednesday with Bewow

  

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One Liner Wednesday’s 

It’s been awhile since I jumped aboard this train of thought. This is mine as part of One Liner Wednesday’s . Please checkout all the inspiration that comes together on Wednesday’s. 

Today I’m sharing that there’s no instruction manuals for raising children. Thankfully there’s plenty of places to learn, research, and gather more tools for your toolbox. 

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Monday Musings-hiding in plain sight

Life has a way of catching up on you without you realizing. Whether you’ve been eating unhealthy, sleep deprived, or skipping out on daily workouts. All the above has happened to me I’ve been dealing with death, disillusionment, and deadlines. It started out as a way to protect my heart, my family, and just not wanting to deal with the sadness of it all. 
I found it difficult to concentrate on anything so I just kept putting my head down and plowing through life. The late night spent reading, researching, and staring at the moon and asking for answers to life’s mysteries has taken their toll. I had to take a backseat as I felt like my emotions were in the drivers seat. I had to share more than I wanted as I walked away from my business, ignored emails, and my accountability fitness group. I protected myself and put my attention  into my family and my passion and dedication to my theatre group. 

This hasn’t been the first time I put my grief on hold. There’s many times when the pain I felt as an emotional reaction and the empathic aftermath of the grief of others has sent me into a tailspin. You wouldn’t know it to look at me. I got up and got my kids off to school, folding my ever flowing laundry baskets, and made my daily phone calls to family and friends to inform them of the sad news. I had to cut of communication with a family member who’s need for greed was too much for me to bear. Yet I continued to pray that their heart and mind would change. Death doesn’t always bring out the best in people. It’s a rude awakening to see it happening right before my eyes and being powerless to change it. 
Every night for eight shows you’d seen me bright and shining on stage with my cast of our pantomime play. I only told three people how I was really feeling and then dry my tears and put my makeup on and carry on. We had boisterous sold out crowds and small appreciative ones who’s interaction with the pantomime play was as entertaining as the acting itself. 
On our final show I was backstage at intermission and everyone was running around signing each other’s programs and making efforts to keep in touch and it struck me like a thunderbolt, that this was my lifeline. These people, the script, costumes, heart to to heart chats whispering back and forth were my way of divinely grieving. I was honouring my loved one by continuing to live! I had dove headfirst into something that gave me a chance to escape and in the process I was healing my heart. I didn’t realize it until I looked around the room and saw those smiling beautiful faces. It thrilled me to have this ephiphany and I wrote something quickly in my notes so I could cherish this moment for always. Today I share it with you and I hope my words bring you some inspiration about finding your passion in life. Thank you never seems like enough to say so to exude those feelings of gratitude is even more special to me. 
  

  
Write a post sharing your thoughts with us – happy, sad, philosophical, ‘silly’ even. Make it as personal as possible.

Use the hashtag #MondayMusings and link to this post.

Add your link to the linky which you will find either here and on the post of a co-host.

Use our #MondayMusings badge to help other bloggers join in too.

Today I link up with #Mondaymusings hosted by Richa Singh and Vidya Sury thank you for having me in your linkup today. 

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My two year journey sharing one story at a time

Well another busy week has passed and low and behold I see this message from WordPress that it’s my two year anniversary of creating my blog. Time sure flies when you’re writing I hadn’t intended to immerse myself in my words as I started out publishing once a month. Now I’ve created unknowingly an online journal for my children.
There may be things here that may be hard for them to digest. Writing of my worries for them but also my joy for their successes and achievements. I write for me and my beloved Mama who’s influence in my life is immense and who started me on the path of my love of words. I only wish she could read them from beyond heaven and earth, no matter what though I know she feels pride.

She had always told me that I would do big things someday and I truly thought that would happen when I became a Mom. I see the path I travel with my children being their advocate and educating everyone in a five mile radius about special needs, neurological disorders and different abilities. If I had known what I know now I would’ve become a neurologist. Yet here I am fascinated with neuroscience and becoming a walking medical dictionary.
I take that as a great compliment and I credit my Mom and my love of research and having a photographic memory. Without even knowing it I’ve created a space here to share, vent, and make sense of my life. I write to express the chaotic thoughts that run with through my hamster like mind. I write to feel comfortable in my skin. There’s times where I leave myself feeling naked and vulnerable with my words upon the digital page.
Yet at the same time relieved that I don’t have to be suffocated with the feeling of them needing to come to life. My one goal last year was to be published. I made that happen first on a website and next for an international magazine! The one thing I wanted more than ever was to see my words in a book and that will be a dream becoming a reality before Christmas!
One of my essays was chosen to be in a book titled Lose The Cape-Never Will I Ever and Then I had kids. I will be featured as a contributor  with another thirty writers sharing our stories. This is a book I’m really proud to be part of and promote. The book is available for preorder on Amazon on Dec. 7 th. 

Amazon Link-Lose The Cape-Never Will I Ever Then I Had Kids

Amazon Link-Lose The Cape Book 1-Realities from Modern day Moms and Strategies to Survive

The Lose the Cape team has been a incredible gift in my life. They have taught me that I’m super just the way I am, and I don’t need a cape to prove it! So cheers to two years of blogging and finding myself and sharing my heart one story at a time.

 

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