Jsack's Mom's Blog

Welcome to my blog where I share my special needs parenting journey with my heart, truth, and love, one story at a time. ❤️

Fridays Feats and Fails

It’s Friday one day closer to the weekend and wow what a week it’s been!!! I’m excited to share it with you. So let’s get to it shall we? I’m so happy and honoured to be co-hosting Friday’s Feats and Fails with the awesome Ash from http://www.morethancheeseandbeer. This is a new adventure for me so I feel giddy with excitement. 😃🎉💃

FEAT-Amazing Grace

My beautiful cousin brought her baby into the world and I haven’t stopped crying since! Amazing Grace was diagnosed in utero as having mosaic triploidy. According to Wikipedia.org research Triploid syndrome is an extremely rare chromosomal disorder. Individuals with triploid syndrome have three of every chromosome, i.e. a total of sixty-nine rather than the normal forty-six chromosomes. There are only sixty recorded cases across the world. Thanks to the research I found on http://www.mommiesofmiracles.com I’m understanding a lot more. These children are blessings, and although there genetically different abled, they are beautiful gifts to the world. 

A Mother’s Love 💗

Amazing Grace was brought into the world on Tues, March. 10 th at 6:04 am she had a healthy delivery and Mom and baby have been doing well. Grace had a defect with her heart diagnosed in utero and no one has known how long she would be earth side. After receiving a heart scan yesterday my cousin was happy to report this morning, that there are NO signs of the defect!!! God is creating miracles for my family daily as Amazing Grace has been defeating the odds against her since her conception. Just yesterday she opened up her eyes for the first time her Uncle held her. Oh and what a beautiful moment that was!  There has been an amazing photographer that has been capturing Grace’s journey with her Mom and Dad. All images are by Love by Krista Evans Photography and she and my cousin have allowed me to share them with you today. 💕

A Father’s Love ❤️

I read all the updates eagerly each moment that my cousin posts them. Today Grace will have a brain scan as she was also diagnosed with agenisus of corpus callosum. According to research from Wikipedia.org (ACC) is a rare birth defect (congenital disorder) in which there is a complete or partial absence of the corpus callosum. It occurs when the corpus callosum, the band of white matter connecting the two hemispheres in the brain, fails to develop normally, typically during pregnancy. 

Amazing Grace is being tested and evaluated in preparation to going home! She’s  classified as a strong baby, despite the disorders and her early arrival of eight days before her due date. The amount of love and prayers that are surrounding Grace and her parents is incredible! Thanks to Krista at Love by Krista Evans Photography 12,000 people have seen my family’s pictures. To me that means that 12,000 people are joining in prayer power! You can view Krista’s amazing body of work here:

https://www.facebook.com/lovebykristaevansphotography


The love, pride, and powerful energy emanating from this family fills my heart to the brim. 💖

FAIL

I’ve been keeping as positive as I can considering how precious life really is. And my own son has to undergo genetic testing for Fragile X and ASD. According to Wikipedia.org Fragile X  is a genetic syndrome. Nearly half of all children with fragile X syndrome meet the criteria for a diagnosis of autism.[1] It is an inherited cause of intellectual disability especially among boys. It results in a spectrum of intellectual disabilities ranging from mild to severe as well as physical characteristics. I’ve had my moments when I’ve dissolved into tears, yelled, cursed, and locked myself away in my pity party of one.

My incredible family has shown me I can have those moments but I just can’t unpack and live there. So other than not cleaning since last weekend, not keeping up with folding my laundry as that relentless bitch is owning me. I’ve been enjoying the sunshine, adventuring with my kids, and counting my blessings. And really appreciating the miracles in life like Amazing Grace’s journey with her phenomenal parents. The strength they’ve shown has been remarkable. In my cousins words to prepare for a life half way through pregnancy, then a possible death, back to preparing for her baby’s life is an extraordinary blessing. I know God will continue to watch over and bless them as they are all miracles of the heart.  💞

Amazing Grace.💖

FEAT

My Captain’s hockey play off round ended for him last Saturday. It was a disappointing loss with some questionable referee calls that ended in a 2-1 loss. It was an exciting game, but I’ll be honest and say this part of being a hockey Mom really sucks. It was so hard to see those disappointed expressions on those sweet children’s faces. They played a great game though and they still have their practices, parents against the kids game, and windup party to look forward too. It was Father son time the next day as my husband took our Captain to work. They both looked so handsome as they dressed up in a shirt and tie. I haven’t seen my son dressed up since his first communion last year. It struck me how fast he’s growing up! I’m so proud of his accomplishments on and off the ice. ❤️

I have so much pride for my Captain and his team. 😃

We also had a major accomplishment as my little Mad dog and I attended the play group specifically for children with special needs. He loved it there as it was fun and manageable with a small group of kids. The most touching moment was when my son thanked me for his happy. I was in awe of him and his gift of understanding in the moment. After the group we attended the indoor playground and he did very well being around more children and some noise. We were both happy to nap when we got home. 😴

“Thank you for my happy Mommy.”

So here we are back to Friday and since our Netflix is M.I.A. due to Mad dog resetting all the information we’ll be watching movies. My wonderful husband picked up Night at the Museum for family movie night and Mocking Jay Part 1 for after they go to bed. Thank you for being here today and please check out everyone else’s post who links up today. 💕

That’s my Friday’s Feats and Fails how’s your week been?

This is going to be an amazing weekend of watching the currents and the classics. 😃🎉


It’s link up time! Don’t mind the HTML code I couldn’t convert it back to text just click on the link below that say inlinkz. 😉

<!– start InLinkz script –>

//static.inlinkz.com/cs2.js?v=116
<!– end InLinkz script –>

12 Comments »

Busting out of my Comfort Zones

Well here I am the night before New Years Eve working on some goals. I’ve had these for awhile but I wouldn’t call them resolutions. Ever since I started this blog it’s become my online journal. I didn’t intend for that to happen, but here it is in all its glory. I believe the best things happen in life when we’re not paying attention to the outcome. I’m not sure if I read that or just came up with it. Either way, it’s been a blessing for me and the best therapy I’ve ever received. And with the years of therapy, and the book shelves full of self help genre that’s a gift in itself. The first blog I wrote a year ago was titled Comfort Zones. So it seems fitting that I writing this one today. I’ve spent a lot of time writing and I have stacks of binders, journals, and pink rose scented paper of my poetry. In one of my many moves I looked at this stack of papers and thought I wonder if I could start a blog with this. So jsack1 was born with jsackmom at the helm. I have yet to include any of my old school writing created with pen and paper. I do plan to let that see the light of day in the new year. So I had the honour of being featured as a guest blogger with the lovely http://loorducation.com. My heart is filled to the brim with gratitude and appreciation. My first guest blog with the beautiful brain filled with me so much pride, and my thankfulness for that opportunity is felt deeply. Then finding out I was featured with http://FeaturedEMag.com while looking for new blogs to follow and finding my own, was truly a gift indeed! I’ve been blessed to meet some wonderful fellow bloggers on this journey to find myself. As well as receiving accolades of the Liebster blogger award and most recently the Very inspiring blog award. Stay tuned as I’ll be writing up my acceptance blog and nominating some other bloggers. As well as sending a proper thank you to the amazing http://maryswordsandpictures.com for the nomination. She has opened the door to allow me to guest blog there as well. I’m also breaking right out of my comfort zones and submitting my writing to websites. I’ve been a little gun shy of this because of submitting before but receiving no response. Due to the encouragement of my lovely blogger friend and my sweet friend my muse, Ingrid, I’ve decided to branch out. I’m taking my blog to another platform on Bloglovin. I will still be here with my supportive WordPress community where your kindness has allowed me to blossom. I thank you and if you’re at Bloglovin let me know and if you’d like to follow me there here’s a link. Thank you my readers for being sweet, wonderful, you. Happy new year blessings sent from my home to yours. ❤️🎶

Follow my blog with Bloglovin

21 Comments »

Comfort zones

I tend to think of comfort zones as being like a pair of warm, fuzzy slippers. You know the ones I’m talking about the pink ones with the ratty ears, dirty nose, and half of the whiskers missing from each of its faces. I had a pair like that when I was fifteen, oh how I loved my bunny slippers. Well that’s another story for another day, when it feels it needs to be written. Lately I’ve been breaking out of my comfort zones firstly writing this blog, finding my voice, saying goodbye to friendships that no longer fit, performing in plays, writing a song, and taking on the choreography to a song and dance in my next performance. So now that I re read what I just wrote that sounds like a lot of growth! Oh my you just don’t know the half of it!!! Well now I digress, it started the day I lost my voice. When I say that, I’m meaning my ability to sing in public. Something I’ve grown up doing and loved greatly. The day came when I my Mom died I felt like a piece of me died too. There I was raising my four year old son and eight months pregnant. So to honor my Mom’s memory I sang at her funeral. How I was able to accomplish that only God and my angel parents know. So to say I was stressed is an understatement!!! When I listened to advice from my well intentioned loved ones to not let my Mother’s death get to me, be strong for my baby and my son. Yeah right, they were all I thought about! So I put my grief on hold to help my son deal with his. I will never forget the honesty and innocence when he presented me with a picture of my Mom, walking hand in hand with God. He told me at the tender age of four, that it was going to be ok, because Grandma was with the angels and would watch over us. Shortly after this I had my baby at 36 weeks, he had to spend time in the N.I.C.U. That was the longest two weeks of my life, as I had to watch my precious baby boy struggle to gain weight and fight jaundice. Which left him so sleepy and unable to feed for long periods of time. So talk about stepping out of my comfort zone I was still used to being pregnant!!! So there I was sent home after five days, and had to go home and look after my oldest son, and manage to be a wife to my dear devoted husband. I went back and forth from home to the hospital to hold and feed my baby. Who was getting stronger day by day, thanks to a very supportive medical staff, a hospital advocate, and of course this strong Momma right here!!! Those days were induced with a combo of what I like to call the three T’s T-3’s, Tiger balm, and tenacity as I was healing from my caesarean section via my baby’s rapid delivery from a ruptured placenta. So eventually my baby came home and we all settled into life as a family of four and I wrapped my head around the fact that I wasn’t pregnant anymore. I believe I did grief that as I wanted to give my baby all the best I could while still dealing with my Mom’s death. So I asked God for strength, the courage to adapt to being a Mother of two, and to lift me out of my pit of post partum depression. Then I began to sing, to my Mom, and to my boys during my daily chores, and of course in the shower (which has the best acoustics, second to that of a church.) God provided for us and answered my prayers in a way I wasn’t expecting in the form of my husbands job transfer. So off we went to set up a new life in a new town living in a hotel while seeking a home and in the process of trying to sell our old one. I was so far out of my comfort zone my head was spinning as I was adapting to all the newness!!! So seven months passed while hotel living, the longest seven months of my life and we found a home. My oldest son was adapting better than I had ever hoped, with his new school and new friends. Everything was going well with my husband’s new job and his support in the community. I struggled while my baby had erratic sleeping patterns and became a “mombie” living on granola bars, yogurt, and Carnation instant breakfast shakes. I slept whenever he slept (which wasn’t very often, at that) and managed to make some new friendships while missing my old ones. I said goodbye to everything I knew and loved, friends who were my family, relatives that took the place of my parents, and my beloved Okanagan. What got me through all this you may ask, well my faith in God, my family, my friends, and plenty of wine on rainy days. So my son and I joined a local theatre group and became to know and work with a wonderful bunch of actors. Then came the day when we had our first show a pantomime where I played not one but three roles. Well what can I say when I jump in, I jump in with both feet! Then spring came and it was a time of rebirth as the first anniversary of my Mom’s death and the third anniversary of my Dad’s death passed. I was asked to portray an Irish character my dear, beloved Nellie Cashman. Then I was to sing Danny Boy an old Irish classic that I grew up singing as I drank tea and enjoyed scones with my Mom, Gram, and her sisters. As I opened up my mouth to sing I found my voice and I sang for all of them. And remembered the stories of the plight of my ancestors as they struggled to leave their beloved Ireland during the potato famine of 1845 first they went to Scotland and then travelled onto New York where they lived for a year and took the train to Canada. After the music stopped and I returned to my mind and heard the applause I knew Irish angel wings were holding me up. So in closing we all may get stuck, we may all die a little inside, but take that step and break out of your comfort zone and chase your dreams. You’ll never know what will happen unless you try. So I will take my own advice and start my next adventure, to be continued….

5 Comments »