Jsack's Mom's Blog

Welcome to my blog where I share my special needs parenting journey with my heart, truth, and love, one story at a time. ❀️

Fridays Feats and Fails

It’s Friday one day closer to the weekend and wow what a week it’s been!!! I’m excited to share it with you. So let’s get to it shall we? I’m so happy and honoured to be co-hosting Friday’s Feats and Fails with the awesome Ash from http://www.morethancheeseandbeer. This is a new adventure for me so I feel giddy with excitement. πŸ˜ƒπŸŽ‰πŸ’ƒ

FEAT-Amazing Grace

My beautiful cousin brought her baby into the world and I haven’t stopped crying since! Amazing Grace was diagnosed in utero as having mosaic triploidy. According to Wikipedia.org research Triploid syndrome is an extremely rare chromosomal disorder. Individuals with triploid syndrome have three of every chromosome, i.e. a total of sixty-nine rather than the normal forty-six chromosomes. There are only sixty recorded cases across the world. Thanks to the research I found on http://www.mommiesofmiracles.com I’m understanding a lot more. These children are blessings, and although there genetically different abled, they are beautiful gifts to the world. 

A Mother’s Love πŸ’—

Amazing Grace was brought into the world on Tues, March. 10 th at 6:04 am she had a healthy delivery and Mom and baby have been doing well. Grace had a defect with her heart diagnosed in utero and no one has known how long she would be earth side. After receiving a heart scan yesterday my cousin was happy to report this morning, that there are NO signs of the defect!!! God is creating miracles for my family daily as Amazing Grace has been defeating the odds against her since her conception. Just yesterday she opened up her eyes for the first time her Uncle held her. Oh and what a beautiful moment that was!  There has been an amazing photographer that has been capturing Grace’s journey with her Mom and Dad. All images are by Love by Krista Evans Photography and she and my cousin have allowed me to share them with you today. πŸ’•

A Father’s Love ❀️

I read all the updates eagerly each moment that my cousin posts them. Today Grace will have a brain scan as she was also diagnosed with agenisus of corpus callosum. According to research from Wikipedia.org (ACC) is a rare birth defect (congenital disorder) in which there is a complete or partial absence of the corpus callosum. It occurs when the corpus callosum, the band of white matter connecting the two hemispheres in the brain, fails to develop normally, typically during pregnancy. 

Amazing Grace is being tested and evaluated in preparation to going home! She’s  classified as a strong baby, despite the disorders and her early arrival of eight days before her due date. The amount of love and prayers that are surrounding Grace and her parents is incredible! Thanks to Krista at Love by Krista Evans Photography 12,000 people have seen my family’s pictures. To me that means that 12,000 people are joining in prayer power! You can view Krista’s amazing body of work here:

https://www.facebook.com/lovebykristaevansphotography


The love, pride, and powerful energy emanating from this family fills my heart to the brim. πŸ’–

FAIL

I’ve been keeping as positive as I can considering how precious life really is. And my own son has to undergo genetic testing for Fragile X and ASD. According to Wikipedia.org Fragile X  is a genetic syndrome. Nearly half of all children with fragile X syndrome meet the criteria for a diagnosis of autism.[1] It is an inherited cause of intellectual disability especially among boys. It results in a spectrum of intellectual disabilities ranging from mild to severe as well as physical characteristics. I’ve had my moments when I’ve dissolved into tears, yelled, cursed, and locked myself away in my pity party of one.

My incredible family has shown me I can have those moments but I just can’t unpack and live there. So other than not cleaning since last weekend, not keeping up with folding my laundry as that relentless bitch is owning me. I’ve been enjoying the sunshine, adventuring with my kids, and counting my blessings. And really appreciating the miracles in life like Amazing Grace’s journey with her phenomenal parents. The strength they’ve shown has been remarkable. In my cousins words to prepare for a life half way through pregnancy, then a possible death, back to preparing for her baby’s life is an extraordinary blessing. I know God will continue to watch over and bless them as they are all miracles of the heart.  πŸ’ž

Amazing Grace.πŸ’–

FEAT

My Captain’s hockey play off round ended for him last Saturday. It was a disappointing loss with some questionable referee calls that ended in a 2-1 loss. It was an exciting game, but I’ll be honest and say this part of being a hockey Mom really sucks. It was so hard to see those disappointed expressions on those sweet children’s faces. They played a great game though and they still have their practices, parents against the kids game, and windup party to look forward too. It was Father son time the next day as my husband took our Captain to work. They both looked so handsome as they dressed up in a shirt and tie. I haven’t seen my son dressed up since his first communion last year. It struck me how fast he’s growing up! I’m so proud of his accomplishments on and off the ice. ❀️

I have so much pride for my Captain and his team. πŸ˜ƒ

We also had a major accomplishment as my little Mad dog and I attended the play group specifically for children with special needs. He loved it there as it was fun and manageable with a small group of kids. The most touching moment was when my son thanked me for his happy. I was in awe of him and his gift of understanding in the moment. After the group we attended the indoor playground and he did very well being around more children and some noise. We were both happy to nap when we got home. 😴

“Thank you for my happy Mommy.”

So here we are back to Friday and since our Netflix is M.I.A. due to Mad dog resetting all the information we’ll be watching movies. My wonderful husband picked up Night at the Museum for family movie night and Mocking Jay Part 1 for after they go to bed. Thank you for being here today and please check out everyone else’s post who links up today. πŸ’•

That’s my Friday’s Feats and Fails how’s your week been?

This is going to be an amazing weekend of watching the currents and the classics. πŸ˜ƒπŸŽ‰


It’s link up time! Don’t mind the HTML code I couldn’t convert it back to text just click on the link below that say inlinkz. πŸ˜‰

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Daily life in my corner of Canada

I’m excited to take part in the Opionated Man from Harsh Reality’s challenge to showcase where I live.  I’m a Canadian who stumbled across his blog from another fellow talented Canadian writer. My corner of the world is a very interesting one and I’m happy to share it with you today. I was born and raised in the beautiful Rocky Mountains of British Columbia Canada. 

Where I grew up in the East Kootneays of BC

Where I lived before in the Fraser Valley in BCο»Ώ
I’ve lived in many different places throughout the province. When I was sixteen I wanted to explore city life once so I moved to Ontario. I lived there for a year and was desperate to get back to my beloved mountains. Due to my husband’s career we move a lot. This is our fourth transfer and our children’s third. Now we currently reside in our new province of Alberta. I honestly didn’t know what to expect when we first moved here, as it’s very flat compared to what I’m used to. In my last town in the Fraser Valley of BC I had mountains in my back yard. Now I reside where I can see clouds stretched out for miles.

Where I live now in Alberta, Canada

When I take walks in my neighbourhood I’m treated to the most amazing gifts of God’s creation. I see brilliant colors woven into the most beautiful sunsets and sunrises. It’s my favourite time of day to take in all this natural beauty. I’ve discovered without mountains I can really see each extraordinary colour in these natural paintings. 

When I take my son to hockey practice we have a 30 minute drive out to the country. It’s my favourite time of the week as my kids and are rocking out to the tunes playing. A little Fleetwood Mac, Three Dog Night, and Motley CrΓΌe. My kids grew up with nursery rhymes and knowing the classics as well. The scenery on our drive has been so breathtaking I’ve had to pull over to take pictures. I’ve never seen such spectactcular cloud porn in all my life!


Our favorite thing to do is take a walk along the river. My husband and I teach our son’s the fine art of skipping stones. The peace and tranquility of listening to the flowing water, feeling the crispness in the air, and taking in the sheer beauty of our surroundings is a wonderful gift. 


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It can get cold really fast too, where it will go from +6 to -16 overnight. It’s been cold enough since November to build an outdoor rink in our backyard. And our first welcome to Alberta blizzard happened in September! There’s also this amazing phenomenon that occurs called a chinook. It’s when a wave of of warm current air mixes with cold air and the temperature can change from -16 to +16 in a matter of hours. It’s the most spectacular weather pattern I’ve ever witnessed! And now that the temperatures dropped I look forward to the next one. 


And the hockey road trips I’ve taken throughout my province have exposed me to some amazing landscapes. I’ve enjoyed each one, and have been grateful to get to know little towns I wouldn’t have known otherwise. 



And I can’t leave out the views I have from my deck that move me me to tears and cause me to write poetry. It’s a gift to live here and I’m glad that I’ve been able to connect to nature and not feel so lost and alone in this new adventure. And just like the picture says this is my own little slice of heaven.

 

Thank you for taking this scenic tour with me. And thank you to Jason at Harsh Reality for suggesting this wonderful idea. 🌸

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Pink shirt day

This has been my submission to https://lindaghill.com One liner Wednesday. Today I support anti bullying awareness and advocate for my children always. πŸ’ž

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The Journey- A limerick

This journey I will take.
Before my wee heart will break.
Into the vast unknown.
I rise to the challenge
Even though I feel alone.

This is my first attempt at writing a poem in the Irish limerick style. I hope I didn’t offend my Celtic ancestry by doing so. Day 2 of my assignment with Blogging 201-Poetry

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Friday’s Feats and Fails

This week has flown by for me it seems Monday is the longest day of the week, and then I blink and it’s Friday. I’m so happy when it’s family movie night as we stay up laughing and enjoying each other’s company. So it was an eventful week so let’s get to it.

FEAT

The biggest event to happen was my Mad dog started potty training!!! Throughout the month of December I’ve been asking him if he wants to wear underwear or a diaper. Well he’s always chosen a diaper and would occasionally go potty. I let the idea be his as with his SPD (Sensory Processing Disorder) it’s not something I can rush. So Tuesday morning I didn’t ask him and he told me he wanted to wear underwear! I’m so proud of my big boy he’s growing up so fast. πŸ˜ƒβ€οΈ

FAIL

Well it’s been a little testy with my kids playing musical beds lately so we all need some sleep. Tempers have been flaring and my Mad dog has learned some words that I didn’t want to hear him say. Nothing like hearing your kid say the word that rhymes with truck in perfect context. 😳 Major parenting fail on my part and I own it. So I’ve been trying to correct that behavior while the Captain giggles in the background.

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*Image used with permission from the sensational Shari at
http://www.sharingwithshari.com*

FEAT

I’ve been writing lots the ideas have just been flowing to me. Taking the blogging 101 classes has been wonderful and I’m finding a lot of great feedback on what I’ve been sharing. I wrote a blog about my surviving Post Partum Depression. It was very hard to write but I had always wanted to tell my story. So I wrote it and saved it as a draft since I was unsure about sharing it. Well I woke up this morning and felt brave and hit the publish button. The response I got back was amazing. I’m so glad I faced my fears and put myself out there to help someone who needed to read that part of my journey. πŸ’—

FAIL

I’ve done zero housework it’s been tough getting anything finished with being on potty alert. So I’ve focused on that and kept up with the laundry and dishes. My kids haven’t been sleeping well so that means I haven’t either. Just as I fall asleep one of them wakes up so we’ve all been short tempered. So now I have to focus on us catching up on those missing zzzz’s and fill up our patience buckets. ❀️

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FEAT

After completing almost all my blogging assignments this week I had some extra time to work on my book draft. I invited my lovely talented friends Loorducation and Imperfect Mom to guest blog for me. I loved having them here to interact with my dear readers and I was also on theirs. I love showcasing different content and reading these incredible ladies stories inspired me. I’ve read so many blogs lately that my books are getting jealous. πŸ˜‰ I found out this morning that another one of my submissions to the http://www.originalbunkerpunks.com was accepted. I’m feeling so grateful and weepy as it’s on their featured page. I can feel my dear beloved Mama smiling down on me.πŸ˜ŠπŸ’–πŸŒŸ

So now it’s the end of the work week so time for another action packed hockey weekend for my family and I. I love seeing my Captain out there playing hard, having fun, and making me proud. πŸ˜ƒπŸ’™πŸŽ‰

This has been my submission to Ash at http://www.morethancheeseandbeer.com. Check out how her week has been and all the other talent that link up. Smooches and hugs. 😘

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