Jsack's Mom's Blog

Welcome to my blog where I share my special needs parenting journey with my heart, truth, and love, one story at a time. ❤️

Living in a sensory overloaded world 

Life isn’t always easy and I make the best of it that I can. I don’t think my life is any worse or any better than anyone else’s, it just is what it is. I have never possessed the Staples magical easy button, but if I did look out world! I do daydream about it occasionally to come up with a working model with creativity and a little wishful thinking on my part. 

I’m a product of my own environment and a lot of time spent in my childhood was loud, confusing, and overwhelming. I came into the world and lived in an incubator for a week while I recovered from being sickly and jaundiced. My Mom had a cold and as a result the Dr took extra precautions with me. This was back in the 70’s when it was perfectly acceptable for Mom’s to stay in the hosiptal longer. Going through my own birth experiences I believe whatever emotion, feeling, thoughts, and drugs for pain management are passed from Mother to baby. 

Without having any personal recollection of my time in the spa I can let my imagination wander and say I must’ve loved it. My jaundice was being taken away under the phototherapy lights, I was warm, comfortable, and it was quiet. As I got older I was a child that thrived in peace and quiet because I saw that my Mom did too. She could fill a room with her twinkling laughter and tell a great joke but she loved the quiet of sitting with a good book and enjoying a nice cup of tea. 

We spent many hours enjoying each other’s company with me wrapped up in a world of make believe with my dolls, Sesame Street, Mr. Dress up and The Friendly Giant as my favourite friends. Whenever it would get noisy with having my siblings home I would retreat to my bed and hide under the covers. I had some certain spots for my quiet time up in a tree, in my blanket fort, and when I was very young I was found one time in the dryer sleeping in the warm and cozy laundry. 

When I needed a sensory break from my environment being too cluttered and confusing I would climb. I was confused for being a monkey on many occasions when someone would ask where I was they would see me climbing the tallest tree or onto the horse stock rack then onto the roof of our house!  I was quite blessed by the hand of God that I didn’t fall off and break my neck or worse! 

Now I’m an adult who still loves to climb and build blanket forts with my kids. I have Sensory Processing Disorder and so do my son’s. It’s not anything I could’ve done to change that outcome since it’s neurological. I’ve read enough in the last two years to help me understand my children’s brains and have seen myself on every page! I was quiet, yet boisterous at times, I preferred to read and write stories, or climb trees, and scrape my knees. Just like any other typical child, yet if my world was to loud, bright, crowded and confusing I’d hide away. 

I read that birth trauma particularly placental complications, is known to be a cause of Sensory Processing Disorder according to the book Out of Sync Child by Carole Stock Kranowitcz. If you’re new to this term and haven’t read my blog I will kindly provide you with a definition. 

Sensory Processing Disorder is Sensory processing (sometimes called “sensory integration” or SI) is a term that refers to the way the nervous system receives messages from the senses and turns them into appropriate motor and behavioral responses. Whether you are biting into a hamburger, riding a bicycle, or reading a book, your successful completion of the activity requires processing sensation or “sensory integration.”

*this definition is provided by the website SPD Foundation.*

There are a lot of different processes with SPD where people are affected in certain ways. I’m very visually stimulated and auditory and tactile hypersensitive. Loud noises bother me, I take everything in while scanning my environment, and there’s certain textures I just won’t touch. I’ve lived with this my whole life and  this is known as Sensory Defensive Disorder. My son’s each have the Sensory avoidance and Sensory seeking behaviours.

 I explain it as follows as we each have a bucket that gets filled with each input throughout our day providing for our eight senses to our central nervous system to our brain.  These senses of touch, taste, smell, hearing, seeing, proprioception, interoception and vestibular. 

Proprioception- meaning ones own individual sense of the relative position of neighboring parts of the body, and strength of effort employed in movement. Yes My youngest son isn’t aware of his body in space, and where that begins and where it ends. So crashing into the wall, toys, or his brother are common, and he’s not aware of it until after the fact.

Interoception -is the sense by which one perceives pain, hunger, bowel/bladder control and the movement of internal organs. So in layman’s terms potty training is a bust as of late; my three year old has awareness but no sense of urge control or the urge to eliminate.

 Vestibular- is the sensory system that provides input about movement and a sense of balance. The brain uses information from the vestibular system in the head, to proprioceptive throughout the body to understand the body’s dynamics and kinematics, which describes the motion of objects or groups of objects, without the consideration of causes of motion. Translation meaning when my youngest son is “stimming,” (stimulating all his senses to seek input in his environment) he will spin for an hour if I let him. I prefer swinging-on actual swings- to regulate my vestibular sense. 

 He’s a “seeker”of all kinds of sensory input. Think of it in terms of having a bucket of water with a hole in the bottom, and it constantly needs to be filled up. The clinical definition is Sensory Modulation Disorder. My oldest son has Sensory Defensive Disorder like me. He has a lot of defensive issues with receiving too much input. 

Picture it as a bucket of water that’s constantly filled, and it’s pouring out all over the floor. His issues are predominantly with auditory, visual, and olfactory senses. It’s a full time job keeping all of us sensory and emotionally regulated, but it’s one I do gladly with the help of noise cancelling headphones, regular occupational, physical,  and speech therapy. 

The one thing I’ve come to realize of this journey in our sensory overloaded world is that it does take a village to raise a child, and if there’s special needs involved it grows in size and heart to provide them with success. I do believe that God only gives me as much as I can handle. Sometimes those days are long and difficult and other days are filled with fun and laughter. I’m blessed that they’re also filled with a lot of love, patience, and kindness, and a strong village. 

Welcome to the Sensory Blog Hop — a monthly gathering of posts from sensory bloggers hosted by  Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about what it’s like to have Sensory Processing Disorder and to raise a sensory kiddo! Want to join in on next month’s Sensory Blog Hop? Click here!


  

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Wearing my heart on my sleeve 

I’ve always been an emotional person the wear my heart on my sleeve kind of gal. There’s times where I think I need to have a thicker skin or put my heart away so I don’t get so easily hurt. It comes part and parcel with being empathic I feel people’s feelings, and I can “touch” people’s energy. I know when someone isn’t good for me or my loved ones and I can stay clear. 

I do my best to give people the benefit of the doubtand not judge a book by its cover. It will still happen to me and someone I love, that’s the way of the world unfortunately. Today was just like any other day before preschool filled with excitement an anticipation.  My son loves going to school and he wears and shows his feelings with his whole body. He was so excited to stomp up the stairs and count with me. He loves seeing his teachers and playing with his favourite toys there.  For the last month him and I have considered this a safe, fun, and educational place. Today though something happened and I’m still trying to process it. 

I have something brewing in my mind and my heart. If I don’t get it out I think I will combust! I was sure as I mulled it over to see how I could’ve handled it differently it would evolve into a blog post at some point. Today I was waiting with my son for preschool to start. There was a couple of families there and a little girl was staring at my son. He was standing there stomping as it’s his new thing that he does to feel comfortable in his environment, to gain sensory input. It’s an eclosed narrow hallway so his stomping is quite loud with its sound vibrations. 

I asked him to please quiet his feet inside and a classmate of his looked at him and announced to her Mom that he was crazy. The Mom (who did not acknowledge me besides with nervous laughter) said to another parent at that age crazy is good. I stood there stupefied, angry, and hurt for my son. I told him you’re awesome and don’t let anyone change that! My son isn’t crazy he’s very busy and full of kinetic energy and must move to learn. He has Sensory Processing Disorder #SPD and this how his eight senses react to sensory input. 

We all know we have our five basic senses of touch, taste, sight, hearing, sound, and smell. There’s many more types of senses but I’ll focus on the other three I was referring to:

  1. Propriocepetion- gives you the ability to know where your body is in space within your environment in relation to your other body parts. Think of the song Head, shoulders, knees, and toes. 
  2.  Equilibrioception- relates to our vestibular sense that’s found in the inner ear. This sensory sense is all about our ability to balance and have agility. 
  3. Interoception- relates to our body’s sensory system to know when we’re hungry, thirsty, or the urge to eliminate. 

My son is constantly seeking sensory input as all these senses build up inside his brain, body, and central nervous system and cause a traffic jam. Some of his senses are strong and some are weak and how he needs to seek out input looks different to everybody.

 This misguided observation we encountered didn’t bother my son at all. He doesn’t see himself any differently from other kids. He continued stomping while I stood there stewing in my furiousness for this hurtful remark. He made music with his feet, all be it loud music and made a little girl dance. Then that started a chain reaction and another classmate started twirling and he was still smiling and stomping. 

Although I saw his happiness I felt my heart crack for my child. He’s not different he’s different abled and is receiving therapy from his team so that he can function better in a world that can at times misunderstand and judge him. On Oct. 8 th it’s Sensory Processing Disorder Awareness please spread the love, awareness, and educate for SPD. 

   
  

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