Jsack's Mom's Blog

Welcome to my blog where I share my special needs parenting journey with my heart, truth, and love, one story at a time. ❤️

Monday Musings

I sit here lost in my thoughts and I wonder to myself what shall I muse about today on this Monday? I have woke up feeling exhausted from all that magical lunar energy that was shared across the globe last night. The truth is I spend a lot of late nights with the moon as my company. Last night wasn’t any different except of the status of the moon in all it’s super blood moon glory! 

 

My view from the live feed from Clay Center Observatory

 
Unfortunately cloud cover impeded my viewing experience yet I knew there was magic happening up there. That helped me to feel connected with the rest of the world and their revelations as we were all gazing upon the same splendour. The lunar vibration in the air was electric and I felt old ideas, thoughts, and patterns start to fall away. Only to have new ideas, creative thoughts, and a sense of renewal take it’s place. A time of rebirth and renewal will begin to take shape in my life and things will start to make sense again. Where I will be blossoming and beginning to thrive instead of just survive! 

   
I like to think of the moon as my late night companion. He comforts me when I can’t sleep due to worry, anxiety, wrapped up in an insomnia based package. When I’m awake listening to the sounds of snoring drifting from each of the bedrooms in my household. As I make my rounds checking on my children tucking them in, tidying up their rooms, making sure they’re organized for school. I then go back and check and re-check my youngest as he suffers with sleep disordered breathing. After two years, countless hours, days, weeks, and months of sleep deprivation he will have a poly sonogram to investigate what the problem is. 

I’ve been through a lot to get him help and haven’t given up when told he had a long tongue that was falling back in his throat and obstructing his airway. I have held him in my arms as his body relaxed and his head tilted back and he stopped breathing. I have shook him awake and cried countless years of tears waiting for his breathing pattern to continue slow and steady. 

During these times the moon has been my best friend comforting me when no one else could. Seeing my tears and without judgement I continued to let them fall until I was emotionally spent. My exhaustion knows no end so I do my best to keep healthy with exercise and proper nutrition. I have ran in empty for far too long so self care has become my saving grace. 

Tonight won’t be any different from any other night. I’ll make the school lunches, bath, book, bed routine will commence with my children. They will read to, loved, cuddled, and prayed for. And the moon will be there for me as I read, write, think, and pray to get through another day watching over me like an old friend. Departing wisdom and magic upon me right when I need it the most. 

This has been my privilege to linkup with Monday Musings hosted by the lovely Crazy Little Family Adventure. If you’re interested in joining up click on the info above. 

#mondaymusings

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Ready, set, go! 

I have so much to do and I’m already overwhelmed thinking about it. I have never ending overflowing laundry baskets and I’m totally my laundry room’s bitch for the past two weeks. I’ve got a wicker basket full of stuff I need to do, and the paperwork monster is threatening to grab me in a choke hold till I cry uncle! I know I can take things one day at a time but it’s my brain that never shuts that doesn’t get that message. 

Last week I had a meeting with my respite worker she asked me if I was a list person. I replied yes I love making lists, a lot of my blog topics start out that way. She asked me to write things out instead of using my notes app. So I did and it’s amazing how something so simple, can be so affective. Today I made another list and each day I cross off my accomplishments. It feels good to see that I’m taking care of things, but my overwhelm is with all the things I still need to do. It’s easy for me  to dispense out advice to friends and say look after your priorities and the housework will be there tomorrow. Like death and taxes laundry will always be something you can count on happening. 

I feel like I’m at the start of the race and I’m waiting for someone to be standing there with a pistol saying ready, set, go and I’m off like I’m lit on fire when I hear that shot go off! On one side of me is my calendar jammed with appointments, and on the other is my phone loaded up with texts, emails, and blog topics I need to return and write. At times we’re neck in neck and I literally feel the sweat pouring down my brow. Then I’m wiping it, dying of thirst, and I fall behind and struggle to keep up. 

There are many phone calls to be made, test results to track down, letters to be written, paperwork to be signed, and faxed. I’ve literally been held paralyzed with anxiety that I have to complete all the things and do it record time. The finish line appears to be so far away and my eyes are getting blurry as exhaustion starts to overtake me. Must be the fact I’m dehydrated and in need of something to quench my thirst. And that pesky cataract starts to bother me when I’m tired. So I start veering off the track and daydreaming while I can scarcely see my opponents in the distance. My vision doubles and I start to yearn for my couch. 

There I can have my fuzzy blanket and security while watching Lawrence of Arabia and enjoy eating a bowl of ice cream. This parenting gig can be hard at times. Add in a list of objectives, goals, and lists and you’ve got another job. Sometimes I just want to say &@@@ it and leave for someone else to do. But if I do that then my children won’t get the services they desperately need. I can’t miss out on that, no matter how mentally, emotionally, and physically, exhausted I am. It’s not fair to them or to me if I fail, there’s a lot of resources and a lot of families in need as well. The autism journey can be a bumpy one at the best and worst of times. I’m learning new terminology everyday and as my brother says ATL’s (another three lettered acronym). 

He told me that last week and I laughed so hard, for about fifteen minutes as my life has become all about the letters. When will it all begin, when I’m assessed for funding, get a case worker assigned to me, or get a therapy team in place. There will be more people joining our small circle, lots of transitions, more appointments, and more trips into the city. I will be requesting a lot of home visits in the beginning. Getting my youngest son prepared for these upcoming changes and strangers in our reclusive world. This is never easy and I can use all the PECS (Picture Example Cards) available, but if he has anxiety about it all it’s just not going to happen. 

I honestly don’t know what to expect from branching out into this new world of programs, people, and personalities. I’m thinking as positively as I can and preparing and educating myself as well. So off I go into the sunset leaving worn out ideas, speculations, and false truths behind. From now on its facts, concrete results, and verified diagnosis’s that will matter. I owe it to my children to get them all the help I can. And I owe it to myself to know and believe this age old wisdom from Yoda. That little green guy’s wisdom has touched my life with its simple but gifted advice more times than I can count. Special thanks to http://lindaghill.com for the writing prompt. I couldn’t think of anything to use it for till now. It’s funny  how I just looked at this picture and words started flowing. Green man wisdom for the win!

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Admit

I must admit I should be sleeping as I’ve been up since the ass crack of dawn. I got up and got my kids ready for hockey, so their Dad could take them to the game. I should be sleeping but my time alone is so precious and I have so many things I want to do. Yet here I sit writing to you, and admitting my faults one by one. I stay up late continuously watching and waiting for someone who needs me. I start my days with little sleep and end them with even less. Even if I’m not needed, I admit I love the feeling of that quiet time when everyone’s sleeping.

It
‘s my precious sliver of the late night where I do things just for me. I drink wine, I sip tea, I read, write, entertain myself with Facebook. I seek out inspiration, quotes, funny memes, I write about whatever pops into my head or discover a new word prompt. I know I have no right to complain about being tired, yet I do. Is it because I like sabotaging myself or is it that me tone is just too valuable to give up? I don’t really know it could be a combination of things, I like the sound of my own voice, as I sing, and I putter around in my kitchen. I grew up with my Mom doing exactly this midnight was her golden time. I would wake up and hear her sweet voice singing and she’d be making tea. I would feel like I was missing out on something magical, so I’d stay up and watch old black and white classic movies till 4 am. Only to have to 4 hours of sleep and have to rush out the door to catch my bus for school. I may have grown up tired but I look back on those time as beautiful moments in my childhood. Magical moments that only my beloved Mama and I would share. She called me her little night owl and now I have one of my own. When he wakes up and sees me on the couch we snuggle together until he falls back to sleep. I carry him to bed and eventually crawl into my own. I know I should’ve gone to bed earlier and I’ll regret skipping sleep on purpose. I have no one to blame but my own self for my sleep deprivation. Would medication help me sleep? Perhaps but I like feeling like me, even if I’m a groggy, sleepy eyed Mombie in the morning. I know I can always catch up on sleep and I must admit that feels like a blessing. This world that I’ve carved out for myself is a secure one. I know with my youngest son’s sleep apnea, and my oldest son’s reoccurring nightmares I will always be needed at the wee hours of the morning. This is part of being a Mom, living with anxiety, and being that proverbial apple not falling from my Mom’s tree. She grew up with a very military style where she went to bed early, kept her room tidy. Her home was as neat as a pin as that’s how my Grandparents liked it. I think when my Mom grew up she began to rebel. Our home wasn’t always neat and tidy.
We had clean clothes, dishes, and food in the cupboards. We may have had to do a mad dash to clean up quickly when company was expected. But we were always happy. My Mom would help my sister and I make our lunches at night. And get us off to school in the morning and she’d be there at the end of the day to ask how was your school day. This is how I grew up and this is the Mom I am today. And I have to admit that feels pretty wonderful to be here raising and watching my boys grow into men. So if I lose sleep well it’s not the end of the world, I’ll catch up and I’ve adapted. I wasn’t much of a sleeper as a child, and now I live that daily. I will take whatever hours I can get always yearning for more, but for now this isn’t broken. My life works, I fix what’s broken, I repair what’s cracked. Whether that’s my heart or my psyche, I know each day I’m trying and I’m not perfect I’m just real and genuine. So if you’ll excuse me I admit I’m a little tired now since seeing the sunrise. I will enjoy a couple hours of slumber and wake up refreshed and ready to take on the world. 😃

This has been my Sunday confession for the lovely Ash of http://www.morethancheeseandbeer.com. Please check out her confession and all the other amazing bloggers that link up. 😘

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