Jsack's Mom's Blog

Welcome to my blog where I share my special needs parenting journey with my heart, truth, and love, one story at a time. ❤️

Irish in my heart

I’m fortunate as I grew up knowing and learning about my Irish heritage. I loved listening to the stories of my ancestors from my Gram and her sisters. Four of my Gram’s siblings came off the boat with their parents, for dreams of a better life. After the devastation of the Great Potato famine of 1845-1849 my Great Great Grandparents and their kin, survived and without them I wouldn’t be here today to tell this story.

Michael and Elizabeth left Scotland at the age of nineteen and traveled by ship to South Hampton, England. At the time, they had three daughters and a son in tow. With competition for jobs, financial security, and food being scarce with the population boom, they made their way to Canada and settled in British Columbia.

My Great Grandparents *image courtesy of my cousin*

My Great Grandfather Michael found work in the mines and was there for twenty-nine years. They hadn’t lived there in the community long when devastation ravaged the town with floods from 1848, to 1947, the mining disaster in May of 1908 that killed one hundred and three miners, and the Great Fire of August. 1 st of 1908 that destroyed the town.

My Great Grandma Elizabeth was pregnant with my Grandma Margaret and due to give birth that hot summer. There were ten lives lost and thousands of homes burnt to the ground. There was a lot of hardship and sadness that my ancestors had to encounter in the new land. I’m happy to report my Gram made it safely into the world as the hospital and the church were the few buildings that were left.

Time passed on with my Gram and her siblings growing up and their parents had added on to their family with four more daughters. More hardship would come to the family as the mine would be closed in order to investigate the fire of 1908. My Great Grandpa Michael had to find work elsewhere. All the daughters worked as well or helped look after the youngest children.

My Great aunts such lovely lasses. *image courtesy of my cousin*

That was the life back then, everyone had a strong work ethic and supported one another. I remember my sweet Gram Margaret telling me stories of her housekeeping days, collecting oranges at the train yard, and working as a caddy at the golf course. The sisters all went on to marry and have families of their own. They still remained close as they raised their children and visited each other when they were Grandparents.

My Gram and 3 of her 5 sisters *image courtesy of my cousin*

A tragic accident in 1917, took the life of the youngest family member Josephine and she died at the age of two, with severe burns to the chest and abdomen. Poor baby girl lighting up the world with her beauty and smile, and for her life to be snuffed out like a candle is so sad. Peter, the only son of nine children returned home from World War 1 and fell ill as well. He succumbed to cerebral meningitis at the age of twenty-six on March. 17th 1922.

He was to sing in the St. Patrick’s day concert that evening for the Knights of Columbus, and he sat up in bed and sang then died. The song that he sang was Danny Boy, a beautiful Irish melody that is dear to my heart to this day.

My Great uncle *image courtesy of my cousin*

After the youngest daughter and only son had passed just 5 years my Great Grandma Elizabeth became ill. My Grandparents were set to get married in the summer month of July and Elizabeth passed 9 days before the wedding. Instead of the church wedding that was planned they quietly got married in the priests rectory of the Holy Family Catholic Church.

My parents got married there as well and my middle sister followed suit and my husband and I proudly married there after. As a devout Irish Catholic family that attended mass every Sunday and invited the priest over for dinner after one of my Great aunts went into the sisterhood. She took the name Sister Michael and lived out her young life devoting herself in service to God.

She passed tragically in a car accident when I was a little girl and my Gram would tell me stories about her love of the family and of the church. There was always tears and hugs given when she spoke of her siblings that had passed on.

My Great aunt Elizabeth and her Father Michael *image courtesy of my cousin*

I celebrate my dearly departed loved ones memories and I carry on the namesake of my Great Grandma, my Great aunt, and my Mom. My Great Grandpa Michael lived on to see his daughters marry and meet his Grandchildren. My Mom had a special relationship with him and would speak of him with joy on her heart. He passed on well into his 80’s to be reunited with his lovely wife and daughters and son.

My Gram and my Mom *image courtesy of my cousin*

My Gram and Mom always said I had the gift of my Great uncle’s vocal talent. To this day when I sing the song of my ancestors homeland Oh Danny Boy I feel uplifted on their angel wings. St. Patrick’s day is celebrated in our family household as much as the joy of birthdays. Wishing you all Irish blessings and may the luck and love of the Irish be with you always. 💚☘️

An adapted version of this story originally appeared on The Wellness Universe titled Irish heritage.

*Special thanks to my cousin Maureen for the use of her family pictures. The late night chats of our family’s story helped me feel closer to my Irish clan.*

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The birthday party

I was so excited when my son received an invitation to his new friends birthday party. Having a child with autism, ADHD, and Sensory Processing Disorder (SPD) birthday parties can be a double edge sword. Firstly, there’s the question of is he going to to be invited to any parties and secondly, do I stay for the party to assist him when he needs help?

The day arrived and I had done all the preparations with my son with a social story, drawing out a schedule, and keeping my visuals handy in case plans had changed. He was quite excited and I needed to drive around the block a couple of times till he can process his feelings.

We arrived at the birthday boys house and was met at the door by the parents. I explained I would stay for 30 minutes until my son felt comfortable then I would quietly leave. I knew I’d be the only parent there as by the age of 6 or 7 it’s a drop off and pick up event.

I haven’t been able to do that with my son in a neurotypical setting there’s a lot of variables to consider. Is the birthday fun going to be too overstimulating for him, will he understand that he can’t open the presents, and lastly will he understand when it’s time to leave.

I sat quietly on the couch making small talk with the parents and surveyed the yard where a nerf gun war was taking place. I had to firmly and directly tell my son the rules as he wasn’t interested in leaving the well stocked toy room. He eventually made it outside and joined in the fun that the other guests were having.

I didn’t want to be that type of parent helicoptering around my son son so I made myself as inconspicuous as possible. With the play getting more intense I could see my sons eyes glaze over and I knew it was time to switch to another activity. That didn’t work out so well so I joined in with playing a football game and hoping my son would want to play as well.

The distraction worked and we were happily tossing the ball back and forth when it was time to come in to have snacks and open presents. My son wasn’t interested in eating but I had begged him to have some carrots as it will fill his sensory seeking need once the game was cut short.

All the kids gathered around and off my son disappeared to a bedroom to have some quiet time. I followed behind him to let him know I was there to help him and the kids were watching the gift opening. He had no interest in me being there or seeing the presents. He asked me to leave and said “I’m fine Mom I got this.”

As I prepared to leave I gave the parents my contact info in case I was needed earlier before pickup. My sons words of I’m fine echoed in my ears as I drove away. I prayed he would be as I wasn’t even close to being okay with leaving him behind.

I spent some time with my older son and then it was time to pick up his brother. I had made sure that I gave him 10 minutes to prepare himself to leave as I followed him to get his shoes and goodie bag. I set the timer on my phone and stood at the door as he got ready to go. As I turned to thank the family for having him at the party he bolted!

Luckily it was within the house and I could get to him quickly. I knew he was having a hard time with transitioning from leaving the party so I remained calm. He professed how he didn’t want to go and I told him all the reasons why we had to leave. I was doing my best to allow him time to process and reached for his hand only to be shot in the throat with a nerf gun.

I was taken aback and started coughing as I unprepared for that impact to my vocal chords. Much to my dismay this whole scene of me chasing him to get the gun and get him out the door was witnessed by all the guests in attendance. I’ve come to a point where I’ve been judged for my parenting that I only care about my child not others opinions.

In that moment I wanted to save my son from any future scenes of chaos and I have pulled him along and carried him out the door. I learned from this experience as it was the only thing I could do in order to help my son. Now I make sure we have a game plan in place and keep the party time to no more than 2 hours.

If things go south as my son reacts to transitioning I have my phone as timer, a little white board so I can draw out the plan ahead of time, and another activity to do as soon as we leave. As I reflect back I know now I was caught up with my son fitting in with his classmates and be like all the other typical kids.

Neurodiversity allows for thinking outside the box and my son is all about doing that in his own way with his stellar imagination. I realized that my need for him to be comfortable at the party spoke volumes about my fear of the unknown.

Now I meet my son where he’s at and time has proven to be the best teacher as well as steadfast love. If I focus on the things he can’t do like stay at a birthday party without me, then how will I celebrate the successes he has that he’s achieved in his own.

I’m happy to say there’s been other birthday parties and he’s felt comfortable enough to ask me to stay or ask to leave if it’s too sensory overwhelming for him. He’s grown and changed so much since that first birthday party and I know no matter what obstacle he faces he’ll be fine, and he’s got this.

Welcome to the Sensory Blog Hop — a monthly gathering of posts from sensory bloggers hosted by the Sensory Spectrum and the Mommy Evolution. Click on the link below to read stories from other bloggers about what it’s like to have Sensory Processing Disorder and to raise a sensory kiddo!

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Green

I’m happy to link up with Stream of Consciousness Saturday hosted by Linda G. Hill. Green is a symbolic colour in my family. We’re 1/3 Irish on my Mom’s side so you can imagine how important St. Patrick’s day was when I was growing up. We would say our prayers, honour St. Patrick and have my ancestors recipe of delicious Irish Mulligan stew.

There was one thing that confused me though could a certain colour of green denote danger? I was told if we were to wear Paddy green that it was bad luck. When you grow up with Irish ancestry a lot of superstitions are a part of life so I just didn’t question it.

I didn’t know what shade of green was paddy anyways so I chose not to wear until I was an adult. Then one day my Mom came to visit me and I was taking her shopping. I came out dressed in a new t-shirt I had bought recently and heard her exclaim “oh no you’re wearing paddy green!”

I went back to my bedroom and changed immediately. I know that may make some laugh as I was grown woman. But when my Mom starting making the sign of the cross and praying the Our Father I took this outburst seriously.

After we got to the food court I asked my Mom what was the superstition connected to that particular colour of green. She had told me my Great Grandparents immigration to Canada, tales of the Irish banshee that had a body of a dog and a face like a scary villain out of Grim’s stories. But really paddy green what was the fear of that?

She had explained that when someone in our family had worn the colour that a relative would die. At first I scoffed then I looked deep into her eyes and was ashamed because there was a belief and fear there.

Who was I to question the validity of a belief she held all throughout her life? After this insightful conversation we went back home and I made her a cup of tea and her favourite treat scones, like my Gram used to make. I cherish those memories and keep our Irish traditions alive with my own children.

My favourite thing about St. Patrick’s day is that there’s no expectations on this day. No need to get dressed up and go out to anyone’s for dinner, or get out of your pyjamas for that matter. The only thing you need to do is be happy, drink green beer, and sing Danny Boy.

In my family I make the green pancakes and potato patties like I would have as a child. And for one day out of the year I speak with an Irish accent. I’m putting those years of theatre training to good use. Also it makes my kids happy, and I love to hear their giggles when I break into song and kick up my heels in an Irish jig. I think the world could use a lot more happy traditions so I wish you a Happy St. Patrick’s day and may the luck of the Irish be with you.

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It takes a village

I recently took a physical for life insurance purposes. My nurse was kind and polite and when I was asked why do I take an anti-depressant when your otherwise healthy? I simply replied “I’m a special needs parent who’s always advocating, teaching, learning, researching, and loving my family I have to cope somehow.”

The look of surprise that crossed his face was something that I’ve seen before. I’ve had people ask me how do you do it, deal with autism, ADHD, ODD, SPD, and a genetic neurological disorder that affects everything from motor skills, to recessive language delay, to selective eating issues due to textures, smells, and shapes of food.

I have no other answer other than I don’t think about it I just do it. All of it needs to be done always. I need to advocate for my children so that they can have access to resources, funding, and therapy inside the school system and outside within the community. I need to keep up with the latest research on my son’s genetic disorder so I know how to help him specifically and what other co-morbidities I need to be aware of. I also need to teach him about number and letter recognition so he can begin to print what he knows. I have to deal with regression as it’s the part of his brain that’s affected by his micro-duplication.

I need to check, double check and help my son re-learn when he’s lost his ability to process what he’s learning in school. He’s come a long way with his progress from screaming if I tried to help him hold a crayon in preschool to printing his name confidently in elementary school. Now his world’s growing bigger as he attempts to make sense of all those letters on the page and learn to read. I remember what joy I felt when my Mom introduced the magical world of books to me.

I long to see that light in my son’s eyes that I know appeared in mine. Yet I see him stumble on three and four letter words and in frustration throw the book across the room. At the moment we’re working on his reading comprehension so that he can create the story from what he sees illustrated on the page. As for the phonics and word recognition I’m using a multi-sensory approach as well as his special education resources teacher does in the classroom.

1. First I print the word then I get him to to tell me the letters and we sound it out and say it together.

2. Next I have him build it with his alphabet letters on the line below.

3. After he prints the word with his pencil.

4. Then we go over the word and use it in a sentence and repeat with the remaining words.

Sometimes he only has enough patience for three words but to me it’s quality over quantity. I learned the Write, build, print method from an amazing website called Understood. I love this website as I now have a resource that’s there to help us both on our learning journey.

When I see the furrow in my son’s brow as he concentrates to maintain his alligator grip on his pencil I marvel at his independence. He sings a little song as he does so. Alligator grip then my pencil doesn’t slip. Then when he’s completed his task his beautiful smile makes his whole face light up. I’m excited to incorporate building Lego into his learning as we work on math next.

I have five months to prepare him to catch up with his peers and continue onto the next grade. He has an excellent team at school who’ve been there to help with his frustrations, transitions with the use of visuals and successes. My son teaches me just as much as I’m teaching him this why I choose medication for myself and seeking the guidance of a therapist.

No parent is an island and it takes a village to raise a child. When it’s a child with special needs it takes strength, courage, and a bigger, non-judgemental village. I need to be able to cope with this roller coaster of a life we lead. I need to stay on task and ten steps ahead of a sensory overloaded meltdown. Most importantly I need to take care of myself and repair what I feel is broken. My mental health and the well being of my children depend on it.

Welcome to Voices of Special Needs Blog Hop — a monthly gathering of posts from special needs bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about having a special needs kiddo — from Sensory Processing Disorder to ADHD, from Autism to Dyslexia! Want to join in on next month’s Voices of Special Needs Hop? Click here!

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The Tear

What is it about the passage of time? I’ve heard that time heals all wounds, time passes on and time is short. It’s that tear in the fabric of time that intrigues me the most. Where you can be another version of yourself-someone who is stronger and makes better decisions and takes a different path in life.

Like the actress Gweneth Paltrow played in the movie Sliding doors her character was on the subway platform deciding if she should or shouldn’t get on the train. The director portrayed what would happen with her life if she stepped on the subway and who she was and who she interacted with.

It really fascinated me with the twists and turns within the plot of the movie. It showed me that you do have to be careful what you wish for. As I’m watching this the character in my favourite TV show #Thisisus is replaying the memory track of what his life was like before when he was a high school football star and adored by everyone. Kevin had colleges scouting him, a girlfriend who loved him and a close relationship with his family. Then it all came to a crashing end when he was tackled in the big game and suffered a broken leg.

He still had the beautiful girlfriend (who he would later go on to marry and divorce), a strong bond with his fraternal twin sister Kate, an emerging relationship with his adopted brother Randall, and his parents Jack and Rebecca that were there to love and support him to this jagged tear to his football dreams. Yet Kevin can’t see past any of that as he sinks into a depression that goes on to shadow his life in his current phase.

What would’ve his life been like if he avoided that devastating hit that changed his path forever? Would he have gone on to football stardom and become the proud recipient of the Heisman trophy, married the girlfriend and lived happily ever after? Even though he’s a television character Kevin and his life story is enthralling to me that he went onto to what appeared to be a good life making a successful living as an actor while recovering from the death of his Father, the rock in his life.

How would his life be any different if he would’ve just thrown the football, avoided the tackle and never have to lose his Dad at such a young age? It’s the conundrum I’m sure most of us have encountered at some point on our path what if I would’ve taken that subway train, stayed with the ex or gotten that scholarship to college. It’s the tearing of the dream that we have for ourselves that can hurt the most where we feel the regrets of time we’ve lost and where the what if’s eat us up inside.

Is the grass always greener over on the other side of the fence? Not necessarily, should we all just be living the life of our dreams with no regrets or resentments? I’ve always intended to raise my sons to follow their dreams, reach for the stars and be kind and giving human beings. It’s the life that we live that shows us who are true character really is. Excepting the hand we’re dealt and taking the leap of faith and being who we’re really meant to be that matters the most.

I saw myself becoming a famous actress and singer entertaining the world with my talent. Unfortunately I didn’t have the courage to pursue those idealistic dreams and leave my parents and go off to the big city. I didn’t believe in myself as much as I should’ve and that tears at my heart still today. But who am I to say that my dreams shall just wither and die? I can still realize them just in a different way, by performing in theatre and pursuing my passion for storytelling.

It’s the gift of words that sets my heart aflutter now as I’m passing on that love of reading and writing to my sons. It fills my eyes with happy tears as I sit and listen to my youngest champion son reading about Pete the Cat and his buttons as he acts and sings out every page. When I thought his brain might not be able to make sense of the letters with his autism and mental processing speed. Then as my heart swells with pride when my oldest rock star son starts reading me an essay that he’s writing for school and telling me he wants to be a writer like me when he’s older.

I wish for them not to struggle with their identities or what direction they should go career wise like I’ve done. To be able to avoid the “hits” that happen in life the fair weather friends, bullies on the playground, and young love breakups. If I could I’d protect them from it all but then they wouldn’t be truly living and discovering the world for what it is. Their time shouldn’t be spent wondering what if but really experiencing all that life has to offer them from school, friendships, love, and beyond!

It’s in these moments that I know I found the right path and even though my mind can wonder about the what if’s of the world it’s the life that I’m living being the best me I can be that matters. Not the one who made her way to Hollywood to become the actress of her dreams who may have caved in to all the pressure that a lot of celebrities fall under and resorted to drugs and alcohol as a way to cope.

I would rather be my authentic self who loves who I see when I look in the mirror, that prays with my children every evening for a better world for them to grow up in, and loves my husband with everything in me. That’s the bond of family that dreams, pride, fantasies, or ego can never tear away.

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Hotel living 101-special needs parenting

A month ago I embarked on a journey to pack up my truck and my kids and headed out on a new adventure. My husband has been working away for 3 months and after solo parenting, recovery from a broken arm, and listing our house for sale I was done! I counted the days till my kids were out of school and got out of dodge.

Once we arrived tired, sweaty, and dis regulated late at night that's when the real fun began. It was a long trip and after listening to my kids nit picking each other for 7 hours. I arrived disheveled and I needed a time out. I love my children but I was "needed out" and wanted to forget my name was Mom. But who would answer if I don't? My husband was off limits as he was attempting to sleep with working the next day. I went into action mode and set up the pullout couch for the kids. I jumped into my pyjamas and crawled into bed. My youngest son was stimming and in need of sensory input and regulation so we needed to fill that asap!

I walked around the hotel and read books and gave him deep pressure hugs that only his Mama can give. Inside I was praying for him to go to sleep as he jumped out of my lap and rolled around on the floor. I felt the need to explain to the front desk hotel staff that my son has autism and not able to follow the quiet time rule after 10 pm rule. He gave me a nod of understanding and I carried on with my regulation methods.

Finally by midnight my son was sleepy so I put him to bed. Meanwhile my brain was on hyper drive as the events of the day piled up and reduced me to tears. I lay there on the cold bathroom until my crying subsided then fell into bed into a deep sleep.

I woke up in the morning feeling like I had ran a marathon then someone had run me over and left me for dead. I needed to eat, shower, brush my teeth, and unpack. Breakfast was complimentary and a Godsend. My youngest son was fascinated with the pancake machine as he pushed the button an they fell onto his plate. Thank God for these little gifts as this held attention long enough for us to get through breakfast and back to our room.

5 ways to survive hotel living special needs style

*Beforehand research your list of hotel options and book one with pool, gym, and spa facilities. Luckily my husband's company took care of that for us in advance.*

  • Swim daily and spend as much time there as you can in order to wear your children out. That includes numerous trips to the water slide and to the hot tub. Water can have a regulating affect on children with sensory disorders if there's no Sensory Defensiveness present and they're comfortable being immersed in a pool.
  • Invest some time in the gym. I go there weekly with my kids to work out. Even at the ages 10 and 6 there's machines they can use like the treadmill, elliptical, spin bike, and free weights. It's a wonderful way to feel healthy and deal with stress.
  • Provide sensory friendly cut up fruit and vegetables for snacks. The crunchy foods provide the sensory seeking benefit as well as toning the jaw muscles. With my sons hypotonia condition in his jaw this is a huge benefit to his sensory diet.
  • Cut back on junk food for snack time. My kids tend to be sponges for everything they absorb like sugar and food dyes. Trust me you don't want a sensory overloaded mind and body meltdown within close quarters in a hotel room!
  • In one word Netflix plus additional DVD's, colouring books, crayons, felts, wipe board books, and washable markers on those inside days when you're too tired to move.

Maintain your children's sensory diet even while on vacation. Move as much as possible explore your local parks, playgrounds, and the city itself. On days when the weather's miserable have board games, puzzles, crosswords, and structured time on electronics. I stress this one as you don't need to struggle with the affects of a dopamine crash after a limit is not followed. We also signed up for the Kids Bowl Free summer program and that's fun for the whole family.

My kids became very creative through the pleas of I'm bored and built themselves and indoor bowling alley that kept them entertained for a few hours. They also did some crafts, painting, and worked on maintaining fine motor strength playing with thinking putty and play dough. Our favourite thing to do is play make believe as they pretended they were superheroes and the world was being covered in lava. I watched my kids jump from bed to bed and marvelled at their imaginations.

After a month of hotel living I'm confident I made the right choice to reunite as a family. I wanted my kids to have a fun summer instead of being stressed about keeping a clean house for showings while attempting to sell. Now I spend my spare time reading, writing, organizing housing information and counting off the days till our new homes possession date then the fun starts again with packing and unpacking. Whatever comes our way we'll get through it as being together as a family is the best place to be.

Come to the Voices of Special Needs Blog Hop. A monthly gathering of posts hosted by the http://www.thesensoryspectrum.com/and http://www.thejennyevolution.com/category/voices-of-special-needs/

Click on the links below to read stories from other bloggers about having a special needs kiddo. From Sensory Processing Disorder to ADHD, from Autism to Dyslexia! Want to join in on next months Voices for Special Needs Blog Hop. Click http://www.thesensoryspectrum.com/sensory-blogger

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Autism and my family’s journey 

It’s been almost 1.5 years ago that my youngest son was diagnosed with autism and a rare neuro developmental disorder called 16p11.2 proximal duplication. Which makes him so rare is that not all 16 th chromosomal abnormalities develop into any other genetic anomaly and in some cases it does. He’s in the 1 % where the duplication develops into autism affecting his central nervous system, auditory system, visual system, as well as his sense of taste and smell.

Essentially the disorder means that he has an extra band of DNA in the 16 th area of his chromosome. We all have one individual band on each side of our long and short arm of our chromosomes.  In my son’s case he has 3, one on his left arm and 2 on his right. All this extra genetic material can manifest into other disorders such as ADHD, ODD, OCD, and mood disorders such as bipolar depression, schizophrenia, and learning disabilities.

My son can also be affected medically with auto immune disorders, spinal growths known as chiarri and a possibility of tumours. I just learned of his diagnosis almost 1.5 years ago which led to the diagnosis of autism level 3 stated in the DSM 5. Which means he’s needing substantial support for resistant and persevasive behaviours.

I will admit when I heard his pediatrician give his diagnoses I cried and I shook so hard that I fell off my chair! I completely lost control while the doctor said she was sorry over and over again. What was she sorry for? Her world didn’t change in an instant? This is my first time writing about it as I had to process it.

In the meantime I’ve gone into my “Mom research mode” and learned more of how to help my son.  I recently met with a geneticist for counselling and she provided me with some more information.  She was impressed that I was aware of so much already. I was left on your own after my son’s paediatrician left her practice so I didn’t have a choice.

I’ve always referred to my son as my SPD (Sensory Processing Disorder) Superhero now he’s my champion. I never knew what his life would hold for him as I held him in my arms when he came into the world. He was a tiny 6 lb, 2 oz bundle of joy with a fighting spirit. Now he’s grown into a strong, independent, precocious, fun loving, six year old boy. He has had a lot to contend with in his young life. Along with his autism and rare diagnoses he also has other disorders.

The first discovery after his assessments was Global Developmental Delay. Meaning he has a severe deficit in two or more motor skills. This label phases out after the age of 5 developmentally as a child ages. My son has a severe recessive speech deficit and moderate expressive language, as well as severe fine motor skills and moderate gross motor skills delay. He’s verbal but needs instructions broken down for him in a way he can understand. All this new information leads to yet another diagnosis of Intellectual Development Delay

For eg: First, Then, and After. Which helps him process things better with his executive functioning skills. He also has asthma and Obstructive Sleep Apnea that’s controlled with medication. He’s a sensory seeker and has sensory processing disorder, in particular Sensory Modulation Disorder. He can’t spin in a circle in one direction for too long as it overstimulates his vestibular sense. I have to make sure he spins clockwise and counter clockwise or he’s crashing into walls and people. When he was a toddler I used to have to duct tape a body pillow to the wall so he wouldn’t injure himself!

His proprioception sense is weaker so I use a lot of visual spatial concepts and cues to help him understand. He gets very visually overstimulated so I use a white board or visuals to help keep him on task. He’s also wearing his glasses in school to help with that. He has also completed a one year developmental therapy contract having a Behavioural Aide and psychologist working with us in our home. As well as an Educational Aide at school and a Community Aide to help with the social and behavioural aspect.

We use a white board inside and outside the home using the first, then, and after sequence of events. We visual cues (tapping body parts), stating the name of each body part in motion, and crossing the midline, and using visual pictures. My son responds very well to all the above as well as repetitive speech. I’ve seen him struggle with leaving the house to happily going on an adventure.

Every Dr’s appointment, geneticist visit, hospital checkup, and ride to school is an adventure for him. The reason why is because I make it this way by using social stories, sentence strips, and role playing to help him motor plan and process the visual and auditory information. We work diligently to not overwhelm or overload him sensory wise. Our life isn’t easy by no stretch of the imagination but it’s manageable and we share love, laughter, learning, and joy.

From the first time he opened his eyes and looked at me I knew it would be him and I against the world. Now with support, education, awareness, and acceptance we’ve found our special needs village and for that we’re grateful.
Welcome to the Voices of Special Needs Blog Hop. A monthly gathering of posts hosted by the Sensory Spectrum and Jenny Evolution. Click on the links below to read stories from other bloggers about having a special needs kiddo. From Sensory Processing Disorder to ADHD, from Autism to Dyslexia! Want to join in on next months Voices for Special Needs Blog Hop click Here.

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Release Blitz and Solis book review by L.B. Dunbar (writing as Elda Lore)

Title: Solis
Series: Modern Descendants #2
Author: Elda Lore (L.B. Dunbar writing as)
Genre: Paranormal Romance
Release Date: January 30, 2017
Blurb

Veva Matron is a feisty girl raging with suppressed anger and distrust of men.

Solis Cronus is a blindingly beautiful, Greek god of a guy, who likes to play women.

An electric hatred thunders through each of them about the other until one night, lightning strikes. A world of secrets reveals the destiny of two at odds with one another, and clouds the line between love and hate. Can a lively girl find calm in the stormy tension of a boy made of sunshine and sin?

The mythical tale of Zeus and Hera reignites in this modern interpretation of enemies to lovers. Full of flirty sexual angst and teasing temptation, Solis might be the one man who can extinguish Veva’s angry fire and ignite a different sort of flame: desire.

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Author Bio

Elda Lore is the alter ego of L.B. Dunbar. A writer of mythical tales in the modern world.

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Solis Book Review

I have to share my heart was captured when I first read Hades by LB writing as Elda Lore. She took my love of Greek Mythology and the supernatural and turned it into something magical for my eyes and ears to experience! I was eager to read the continuation in Solis and soon fell in love with the book’s new characters. I love a strong female character in whatever genre I’m reading. Seeing what made Viva tick and how her upbringing left her jaded towards men made me feel a kingship with her. Before I met and fell in love with my husband I felt this way myself. She always preferred to be the heartbreaker than being heartbroken. Then along comes Solis Cronus who’s a gorgeous blonde Greek God who exudes sexuality and confidence. She has no time for him as her main concern is enjoying her summer break with her best friend Persephone. Who’s heartbroken after her love Hades returns to the Underworld without her. The story of the Modern Descendants flows beautifully from the introduction of Solis and his family to the conclusion of who will fall in love, lust, or out of Zeke Cronus’ good graces.  Secrets, love affairs, mythology, and modern times mix together to entice the reader and leave them eagerly awaiting the next sequel to the Modern Descendants series. I loved this book and look forward to losing myself in the next adventure of Hephateus coming soon. 
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Acting and other lies I tell myself

When I was a little girl I always wanted to be an actress. I remember late night movie watching with my Mom. We loved the classics of Audrey Hepburn, Lauren Bacall, and Marilyn Monroe. I felt happy and safe in that world of film. When I grew older and had opportunities to participate in school plays and Christmas concerts I jumped at the chance. 

 I memorized songs, dialogue, and full scripts for plays. Theatre had always been my first love and I joined a wonderful group and they quickly became my theatre family. I felt so loved and accepted there with my beloved Hope Pact. I sang with such confidence and determination. Then immersed myself into my character enjoying an Irish accent, and learning my lines, songs, while researching the history of my chosen role. 

Life has always been easier when I’m on my stage. I throw myself into the script and I don’t think of any outside influences. Now I still act but I’m in the background singing with a chorus or taking a secondary role. Where did the confidence go, why don’t I sing with grace and passion like I did before? 

Now I feel like I’m really acting avoiding the hurt I feel when someone has wronged me. I don’t lash out I don’t kick ass or take names like my personality would have me do before. I feel but I’m tending to hide the affects of those emotions more. I’ve always been a person who wore their heart on their sleeve. Which is still true but I act like I’m Teflon and things bounce right off of me. 

They don’t though, it’s just this one act play that has become my life of hiding those true thoughts and feelings. Does anyone care about all the tears I cry flooding my fragile ego until it sinks in an ocean of denial? This is my plight one I choose to accept and be proactive to change. Or continue on with acting and wearing those rose coloured glasses that impede my true vision.  The time to be real is now and stop acting like I’m wearing a titanium suit of armour. I will persevere I always do, find my voice again, sing with courage and conviction, and leave the actress on the stage where she belongs. 

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Celebrate Blogging Linkup Party #20

WELCOME TO THE PARTY!!!
Is it just me or is November flying by?!
I can’t believe Thanksgiving is less than a couple weeks away.
This past weekend we did our thankful jar and made some
leaf rubbing books. 

I also did a little Christmas shopping! I got the kids Christmas
pajamas, Christmas books, advent activity books and other little things.
I love a Target Christmas run…don’t you?!-Arianne

LET’S START CELEBRATING…!
Grab a button for your blog sidebar!

CELEBRATE BLOGGING LINK-UP PARTY!

CELEBRATE WITH US…JOIN OUR FACEBOOK GROUP:
FOLLOW OUR PINTEREST BOARD:
We pin every link to our board every week!!!

ARIANNE FROM FAMILY JOYS:

JEANINE FROM JSACK’S MOM’S BLOG

BIBI FROM SIMPLE SUMMIT:

SHANNON FROM CRAFTY MAMA IN ME:

MARILYN FROM FINANCIALLY SHOPPING:





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photo
Arianne
Family Joys

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